The Effect of Pirfenidone on Cough in Patients With Idiopathic Pulmonary Fibrosis

NCT ID: NCT02009293

Last Updated: 2016-12-23

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

43 participants

Study Classification

OBSERVATIONAL

Study Start Date

2013-12-31

Study Completion Date

2016-12-31

Brief Summary

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In this study we evaluate the effect of Pirfenidone on cough and quality of life in patients with idiopathic pulmonary fibrosis (IPF) that are treated with Pirfenidone in daily practice. The hypothesis is that Pirfenidone will decrease cough and increase quality of life.

Detailed Description

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Rationale: Idiopathic Pulmonary Fibrosis (IPF) is a progressive fibrotic lung disease of unknown cause with a median survival of 3-5 years. No curative treatment exists, though in 2011 Pirfenidone was approved for the treatment of IPF as it appeared to slow down the decline in lung function. In patients with IPF, the most common symptoms are cough and breathlessness. Cough is not only a major distressing and disabling symptom but also an independent predictor of disease progression and death in IPF. Recent preliminary data suggest a possible effect of Pirfenidone on cough.

Objective: In this study we want to objectively measure the effect of Pirfenidone on cough in patients with IPF that are treated with Pirfenidone in daily practice .

Study design: This is a prospective, observational, international multicenter study.

Intervention: Objective 24-hour cough frequency will be recorded using the Leicester Cough Monitor (LCM), a validated ambulatory cough monitoring system, prior to starting with Pirfenidone treatment. The cough recording will be repeated at 4 weeks and at 12 weeks during treatment with Pirfenidone. At the days of cough recording, patients will be asked to fill in questionnaires related to cough and to quality of life. Patient will be treated according to normal clinical practice at their Physician's discretion.

Main study parameters/endpoints: The primary endpoint is change in cough frequency measured by the Leicester cough monitor at week 12 compared to baseline. Secondary endpoints look at the relationships between cough, change in cough, quality of life and clinical parameters.

Conditions

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Idiopathic Pulmonary Fibrosis

Keywords

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idiopathic pulmonary fibrosis cough quality of life

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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Cough IPF

Male and female with idiopathic pulmonary fibrosis and cough and about to start on Pirfenidone according to regular practice will be asked to wear a cough monitor 24 hours before starting Pirfenidone and twice 24 hours while using Pirfenidone. Patients will also be asked to fill in questionnaires about quality of life and cough.

Cough monitor

Intervention Type OTHER

questionnaires about cough and quality of life

Interventions

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Cough monitor

questionnaires about cough and quality of life

Intervention Type OTHER

Other Intervention Names

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cough monitoring Leicester Cough Monitor

Eligibility Criteria

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Inclusion Criteria

* Diagnosis of IPF according to American Thoracic Society (ATS) / European Respiratory Society (ERS) criteria (5), definite and probable patients will be eligible
* Written informed consent
* Daily cough related to IPF (exclusion of other causes) present \> 8 weeks
* cough score on visual analogue scale of ≥ 40 mm.
* Carbon monoxide transfer capacity corrected for hemoglobin (TLCOc) ≥ 30% and Forced Vital Capacity (FVC) ≥ 50%
* Pirfenidone therapy about to be initiated
* if a history positive for Gastro Esophageal Reflux (GER), using proton pump inhibitor (PPI) \> 4 weeks

Exclusion Criteria

* Opiates, antitussive medication, antihistamines, steroids \> equivalent of 10 mg prednisone or N-acetylcysteine (NAC) within two weeks before study
* Change of steroid \< 10 mg, inhalation steroids within 2 weeks of the study - History of bronchial hyper responsiveness or asthma or relevant airway obstruction (FEV1/FVC \< 0.7)
* within 6 weeks of the start signs of respiratory tract infection, change of sputum production and fever.
Minimum Eligible Age

40 Years

Maximum Eligible Age

85 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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University of Catania

OTHER

Sponsor Role collaborator

University of Lyon

OTHER

Sponsor Role collaborator

King's College Hospital NHS Trust

OTHER

Sponsor Role collaborator

Royal Brompton & Harefield NHS Foundation Trust

OTHER

Sponsor Role collaborator

Erasmus Medical Center

OTHER

Sponsor Role lead

Responsible Party

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Marlies Wijsenbeek

MD PhD

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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M. S. Wijsenbeek, Dr.

Role: STUDY_CHAIR

Erasmus Medical Centre Rotterdam, The Netherlands

C. Vancheri, Prof.

Role: PRINCIPAL_INVESTIGATOR

University of Catania, Italy

V. Cottin, Prof.

Role: PRINCIPAL_INVESTIGATOR

Louis Pradel hospital, Lyon, France

S Birring, Dr.

Role: PRINCIPAL_INVESTIGATOR

Department of Respiratory Medicine,King's College Hospital.Denmark Hill, London

A Russell

Role: PRINCIPAL_INVESTIGATOR

Royal Brompton & Harefield NHS Foundation Trust

E Renzoni, Dr.

Role: PRINCIPAL_INVESTIGATOR

Royal Brompton & Harefield NHS Foundation Trust

Locations

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University Lyon 1, Louis Pradel hospital, Lyon. FranceService de pneumologie, hôpital Louis Pradel

Lyon, , France

Site Status

Regional Centre for Rare Lung Disease University of Catania.

Catania, , Italy

Site Status

Erasmus MC Rotterdam, Dep. of Pulmonology

Rotterdam, , Netherlands

Site Status

Countries

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France Italy Netherlands

Other Identifiers

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NL44729.078.13

Identifier Type: -

Identifier Source: org_study_id