Trial Outcomes & Findings for Clinical Study of Macitentan in Patients With PAH to Psychometrically Validate PAH-SYMPACT Instrument (NCT NCT01847014)

NCT ID: NCT01847014

Last Updated: 2018-08-22

Results Overview

Safety events are reported and documented as defined in study protocol from baseline to end of treatment period including safety follow-up visit.

Recruitment status

TERMINATED

Study phase

PHASE3

Target enrollment

4 participants

Primary outcome timeframe

From Visit 1 to Post-treatment safety follow-up visit (30 days after discontinuation of the study drug).

Results posted on

2018-08-22

Participant Flow

All sites activated on the SYMPHONY AC-055-401 clinical trial were invited to participate in this open-label extension study. Due to meeting the study closure milestone, defined as the marketing of Opsumit on 18 OCT 2013, only two sites received activation. Recruitment occurred between Quarter 2 2013 and Quarter 3 2015.

Subjects who completed the sixteen week treatment of macitentan on the SYMPHONY AC-055-401 clinical trial were eligible to enter this open-label extension study.

Participant milestones

Participant milestones
Measure
Macitentan
Macitentan tablet, dose of 10 mg, once daily.
Baseline Extension Visit
STARTED
4
Baseline Extension Visit
COMPLETED
4
Baseline Extension Visit
NOT COMPLETED
0
Completion of Extension Study
STARTED
4
Completion of Extension Study
COMPLETED
0
Completion of Extension Study
NOT COMPLETED
4

Reasons for withdrawal

Withdrawal data not reported

Baseline Characteristics

Clinical Study of Macitentan in Patients With PAH to Psychometrically Validate PAH-SYMPACT Instrument

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
Macitentan
n=4 Participants
Macitentan tablet, dose of 10 mg, once daily.
Age, Categorical
<=18 years
0 Participants
n=5 Participants
Age, Categorical
Between 18 and 65 years
3 Participants
n=5 Participants
Age, Categorical
>=65 years
1 Participants
n=5 Participants
Age, Continuous
60.8 Years
n=5 Participants
Sex: Female, Male
Female
4 Participants
n=5 Participants
Sex: Female, Male
Male
0 Participants
n=5 Participants
Ethnicity (NIH/OMB)
Hispanic or Latino
0 Participants
n=5 Participants
Ethnicity (NIH/OMB)
Not Hispanic or Latino
4 Participants
n=5 Participants
Ethnicity (NIH/OMB)
Unknown or Not Reported
0 Participants
n=5 Participants
Race (NIH/OMB)
American Indian or Alaska Native
0 Participants
n=5 Participants
Race (NIH/OMB)
Asian
0 Participants
n=5 Participants
Race (NIH/OMB)
Native Hawaiian or Other Pacific Islander
0 Participants
n=5 Participants
Race (NIH/OMB)
Black or African American
1 Participants
n=5 Participants
Race (NIH/OMB)
White
3 Participants
n=5 Participants
Race (NIH/OMB)
More than one race
0 Participants
n=5 Participants
Race (NIH/OMB)
Unknown or Not Reported
0 Participants
n=5 Participants

PRIMARY outcome

Timeframe: From Visit 1 to Post-treatment safety follow-up visit (30 days after discontinuation of the study drug).

Population: Four participants represent the Extension Analysis Set, who transitioned from completion of SYMPHONY AC-055-401 to this open-label extension clinical trial.

Safety events are reported and documented as defined in study protocol from baseline to end of treatment period including safety follow-up visit.

Outcome measures

Outcome measures
Measure
Macitentan
n=4 Participants
Macitentan tablet, dose of 10 mg, once daily.
Incident Rate of Adverse Events (AEs).
Participants with severe intensity AEs
1 Participants
Incident Rate of Adverse Events (AEs).
Participants with AEs
3 Participants

Adverse Events

Macitentan

Serious events: 1 serious events
Other events: 3 other events
Deaths: 0 deaths

Serious adverse events

Serious adverse events
Measure
Macitentan
n=4 participants at risk
Macitentan tablet, dose of 10 mg, once daily.
Respiratory, thoracic and mediastinal disorders
Chronic Obstructive Pulmonary Disease Exacerbation
25.0%
1/4 • Number of events 1
Cardiac disorders
Pulmonary Arterial Hypertension Exacerbation
25.0%
1/4 • Number of events 1
Cardiac disorders
Pulmonary Hypertension Exacerbation
25.0%
1/4 • Number of events 1
Cardiac disorders
Right Heart Failure
25.0%
1/4 • Number of events 1

Other adverse events

Other adverse events
Measure
Macitentan
n=4 participants at risk
Macitentan tablet, dose of 10 mg, once daily.
Metabolism and nutrition disorders
Hyperlipidaemia
25.0%
1/4 • Number of events 1
Metabolism and nutrition disorders
Hypokalaemia
25.0%
1/4 • Number of events 1
Metabolism and nutrition disorders
Type 2 Diabetes Mellitus
25.0%
1/4 • Number of events 1
Metabolism and nutrition disorders
Hypoglycaemia
25.0%
1/4 • Number of events 1
Cardiac disorders
Right Heart Failure
25.0%
1/4 • Number of events 1
Ear and labyrinth disorders
Vertigo
25.0%
1/4 • Number of events 1
Gastrointestinal disorders
Diarrhoea
25.0%
1/4 • Number of events 1
Gastrointestinal disorders
Nausea
25.0%
1/4 • Number of events 1
Gastrointestinal disorders
Vomiting
25.0%
1/4 • Number of events 1
General disorders
Chest Pain
25.0%
1/4 • Number of events 1
Musculoskeletal and connective tissue disorders
Pain In Jaw
25.0%
1/4 • Number of events 1
Nervous system disorders
Headache
25.0%
1/4 • Number of events 1
Renal and urinary disorders
Renal Impairment
25.0%
1/4 • Number of events 1
Respiratory, thoracic and mediastinal disorders
Chronic Obstructive Pulmonary Disease Exacerbation
25.0%
1/4 • Number of events 1
Respiratory, thoracic and mediastinal disorders
Pulmonary Arterial Hypertension Exacerbation
25.0%
1/4 • Number of events 1
Respiratory, thoracic and mediastinal disorders
Pulmonary Hypertension Exacerbation
25.0%
1/4 • Number of events 1
Respiratory, thoracic and mediastinal disorders
Epistaxis
25.0%
1/4 • Number of events 1
Skin and subcutaneous tissue disorders
Hyperhidrosis
25.0%
1/4 • Number of events 1
Vascular disorders
Flushing
25.0%
1/4 • Number of events 1

Additional Information

Scott Tsurutani

Actelion Pharmaceuticals US, Inc.

Phone: 6508086586

Results disclosure agreements

  • Principal investigator is a sponsor employee Any study-related publication written independently by investigators must be submitted to Actelion for review at least 30 days prior to submission for publication or presentation. Upon review, Actelion provide comments, and may also request alterations and/or deletions for the sole purpose of protecting its confidential information an/or patient rights. Neither the institution nor the investigator should permit publication during such a review period.
  • Publication restrictions are in place

Restriction type: OTHER