Treatment of Congenital Factor VII Deficiency

NCT ID: NCT01779921

Last Updated: 2017-01-12

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

163 participants

Study Classification

OBSERVATIONAL

Study Start Date

2005-10-31

Study Completion Date

2012-01-31

Brief Summary

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This study is conducted globally. The aim of this study is to describe the treatment modalities and outcomes of bleeding episodes, surgery and prophylaxis in patients with factor VII (FVII) deficiency in addition to evaluate the presence (in already treated patients) and/or the appearance of inhibiting antibodies to FVII and/or therapy-related thrombosis.

Due to a Novo Nordisk commitment to the Committee for Medicinal Products for Human Use (CHMP), Novo Nordisk receives data on treatment with activated recombinant human FVII (rFVIIa, NovoSeven®) in patients with FVII deficiency from the Seven Treatment Evaluation Registry (STER, NCT01269138). These patients can also have been treated with other haemostatics for systemic administration.

Detailed Description

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Conditions

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Congenital Bleeding Disorder Congenital FVII Deficiency

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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FVII

activated recombinant human factor VII

Intervention Type DRUG

Treatment of bleeding episodes and treatment during surgery and prophylaxis as per discretion of the investigator.

Fresh frozen plasma (Source unspecified)

Intervention Type DRUG

Treatment of bleeding episodes and treatment during surgery and prophylaxis as per discretion of the investigator.

Plasma-derived FVII (LFB)

Intervention Type DRUG

Treatment of bleeding episodes and treatment during surgery and prophylaxis as per discretion of the investigator.

Prothrombin Complex conc. (PCC)

Intervention Type DRUG

Treatment of bleeding episodes and treatment during surgery and prophylaxis as per discretion of the investigator.

Plasma-derived FVII conc. (pdFVII Baxter)

Intervention Type DRUG

Treatment of bleeding episodes and treatment during surgery and prophylaxis as per discretion of the investigator.

Plasma-derived FVII conc. (pdFVII PFL)

Intervention Type DRUG

Treatment of bleeding episodes and treatment during surgery and prophylaxis as per discretion of the investigator.

Interventions

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activated recombinant human factor VII

Treatment of bleeding episodes and treatment during surgery and prophylaxis as per discretion of the investigator.

Intervention Type DRUG

Fresh frozen plasma (Source unspecified)

Treatment of bleeding episodes and treatment during surgery and prophylaxis as per discretion of the investigator.

Intervention Type DRUG

Plasma-derived FVII (LFB)

Treatment of bleeding episodes and treatment during surgery and prophylaxis as per discretion of the investigator.

Intervention Type DRUG

Prothrombin Complex conc. (PCC)

Treatment of bleeding episodes and treatment during surgery and prophylaxis as per discretion of the investigator.

Intervention Type DRUG

Plasma-derived FVII conc. (pdFVII Baxter)

Treatment of bleeding episodes and treatment during surgery and prophylaxis as per discretion of the investigator.

Intervention Type DRUG

Plasma-derived FVII conc. (pdFVII PFL)

Treatment of bleeding episodes and treatment during surgery and prophylaxis as per discretion of the investigator.

Intervention Type DRUG

Eligibility Criteria

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Inclusion Criteria

* Signed informed consent by the patient or next of kin or legally acceptable representative to collect data on treatment of a given bleeding episode, surgical event or prophylactic regimen as specified in the protocol. If informed consent is provided by the next of kin or legally acceptable representative, consent must also be obtained from the patient as soon as he/she is able to do so. Informed consent should preferentially be obtained before initiation of treatment or as a minimum before entry of data into the database
* Any patient with a FVII deficiency for whom treatment of bleeding episodes, prevention related to surgery and primary/secondary prophylaxis is considered necessary by the treating physician can be enrolled
* Patients with FVII deficiency without any immediate need for treatment will be entered as stand by registered patients with capture of baseline- and demographic data only. Admission data is entered once an event occurs
Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Novo Nordisk A/S

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Global Clinical Registry (GCR, 1452)

Role: STUDY_DIRECTOR

Novo Nordisk A/S

Locations

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Novo Nordisk Investigational Site

Princeton, New Jersey, United States

Site Status

Novo Nordisk Investigational Site

Paris La Défense Cedex, , France

Site Status

Novo Nordisk Investigational Site

Mainz, , Germany

Site Status

Novo Nordisk Investigational Site

Vouliagment, , Greece

Site Status

Novo Nordisk Investigational Site

Kowloon, , Hong Kong

Site Status

Novo Nordisk Investigational Site

Bangalore, , India

Site Status

Novo Nordisk Investigational Site

Tehran, , Iran

Site Status

Novo Nordisk Investigational Site

Kfar Saba, , Israel

Site Status

Novo Nordisk Investigational Site

Rome, , Italy

Site Status

Novo Nordisk Investigational Site

Karachi, , Pakistan

Site Status

Novo Nordisk Investigational Site

Belgrade, , Serbia

Site Status

Novo Nordisk Investigational Site

Bratislava, , Slovakia

Site Status

Novo Nordisk Investigational Site

Madrid, , Spain

Site Status

Novo Nordisk Investigational Site

Bangkok, , Thailand

Site Status

Novo Nordisk Investigational Site

Istanbul, , Turkey (Türkiye)

Site Status

Novo Nordisk Investigational Site

Caracas, , Venezuela

Site Status

Countries

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United States France Germany Greece Hong Kong India Iran Israel Italy Pakistan Serbia Slovakia Spain Thailand Turkey (Türkiye) Venezuela

References

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Mariani G, Dolce A, Batorova A, Auerswald G, Schved JF, Siragusa S, Napolitano M, Knudsen JB, Ingerslev J; STER and the International Factor VII Deficiency Study Groups. Recombinant, activated factor VII for surgery in factor VII deficiency: a prospective evaluation - the surgical STER. Br J Haematol. 2011 Feb;152(3):340-6. doi: 10.1111/j.1365-2141.2010.08287.x. Epub 2010 Dec 16.

Reference Type RESULT
PMID: 21158750 (View on PubMed)

Mariani G, Dolce A, Napolitano M, Ingerslev J, Giansily-Blaizot M, Di Minno MD, Auerswald G, De Saez AR, Tagliaferri A, Batorova A; STER (Seven Treatment Evaluation Registry). Invasive procedures and minor surgery in factor VII deficiency. Haemophilia. 2012 May;18(3):e63-5. doi: 10.1111/j.1365-2516.2012.02751.x. Epub 2012 Feb 22. No abstract available.

Reference Type RESULT
PMID: 22356641 (View on PubMed)

Related Links

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http://novonordisk-trials.com

Clinical Trials at Novo Nordisk

Other Identifiers

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F7HAEM-3578

Identifier Type: -

Identifier Source: org_study_id

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