Quality of Life Study for Sickle Cell Patients Treated With Jobelyn (Sorghum Bicolor Extract)

NCT ID: NCT01704794

Last Updated: 2013-04-04

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

UNKNOWN

Clinical Phase

PHASE1/PHASE2

Total Enrollment

96 participants

Study Classification

INTERVENTIONAL

Study Start Date

2013-04-30

Study Completion Date

2014-09-30

Brief Summary

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The purpose of this study is to determine the antioxidant effect of prolonged use of sorghum bicolor (jobelyn) to increase the level of plasma superoxide dismutase and glutathione reductase in patients with sickle cell disease and to determine if there is any improvement in the quality of life of the patients.

Detailed Description

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Jobelyn is an extract of sorghum bicolor that is popular in Nigeria as a herbal food supplement. This extract has been shown to have a high oxygen radical absorbance capacity (ORAC 37,622micro mole TE/g) compared to other botanical preparations 1. A second proven property is its anti inflammatory effect with a selective COX 2 inhibition 2. It has also been shown to correct anaemia induced in experimental rabbit by trypanosome brucei brucei 3.

Jobelyn is being consumed as a herbal nutritional supplement in many disorders including sickle cell disease in Nigeria without complaint in over 15 years. The toxicology profile is impressive with a wide therapeutic range.

Nigeria is one of the countries with the largest burden of sickle cell disease. It is a chronic genetic disorder that accounts for absenteeism at school and at work place. There is also a significant shortening of the life span of the affected patients. Sickle cell anaemia presents with recurrent bone pains and progressive organ damage that affects negatively the quality of life of the patients. Available measures that have been in use include use of hydroxyurea, chronic and acute red cell transfusion and haematopoietic stem cell transplantation. These have limitations in terms of adverse effects, cost and availability.

The pathogenesis involves intracellular precipitation of the mutant haemoglobin, rigidity of the cell, adhesion of cells to the endothelium. These cause recurrent tissue hypoxia and reperfusion which cause release of reactive oxygen series and agents of inflammation. The extract of sorghum is therefore expected to improve the quality of life of these patients.

Previous work done, have not investigated the long time effect of the extract on the quality of life of sickle cell patients. This study is therefore designed to compare the quality of life of patients on 500mg daily, 250mg daily and 2mg daily of jobelyn using adjusted standard tools. The secondary outcomes to study are changes in indicators of inflammation and systemic antioxidants in these patients. The study period is 12 months so that the period shall involve all the weather conditions in the region.

Conditions

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Other Sickle-cell Disorders With Crisis, Unspecified

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

TREATMENT

Blinding Strategy

TRIPLE

Participants Caregivers Investigators

Study Groups

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Folic Acid + Paludrine +Jobelyn (500mg)

Folic acid 5mg given twice daily. Paludrine 50mg to 20mg daily. Jobelyn 500mg once daily.

Group Type ACTIVE_COMPARATOR

Folic Acid + Paludrine + Jobelyn (500mg)

Intervention Type DIETARY_SUPPLEMENT

Combination of routine drugs + Jobelyn

Folic Acid + Paludrine +Jobelyn (250mg.)

Folic Acid 5mg daily Paludrine 20 - 40mg daily Jobelyn 250mg daily

Group Type ACTIVE_COMPARATOR

Folic Acid + Paludrine + Jobelyn (250mg)

Intervention Type DRUG

Standard routine drugs for treatment of SCD with 250mg Jobelyn

Folic Acid + Paludrine + Jobelyn (2mg)

Folic Acid 5mg daily Paludrine 20 - 40mg daily Jobelyn 2mg daily

Group Type ACTIVE_COMPARATOR

Folic Acid + Paludrine + Jobelyn (2mg)

Intervention Type DIETARY_SUPPLEMENT

Combination of Paludrine + Folic Acid and Jobelyn 2mg (Sorghum bicolor extract)

Interventions

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Folic Acid + Paludrine + Jobelyn (500mg)

Combination of routine drugs + Jobelyn

Intervention Type DIETARY_SUPPLEMENT

Folic Acid + Paludrine + Jobelyn (250mg)

Standard routine drugs for treatment of SCD with 250mg Jobelyn

Intervention Type DRUG

Folic Acid + Paludrine + Jobelyn (2mg)

Combination of Paludrine + Folic Acid and Jobelyn 2mg (Sorghum bicolor extract)

Intervention Type DIETARY_SUPPLEMENT

Other Intervention Names

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Routine drugs Sorghum bicolor extract (Jobelyn 500mg) Routine drugs Sorghum bicolor extract (250mg) Other Names: Routine drugs Jobelyn (Sorghum bicolor extract)

Eligibility Criteria

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Inclusion Criteria

1. AGE : 14 To 40 years
2. SEX: Both sexes
3. Homozygous for the S gene (SS)

Exclusion Criteria

1. Age below 14 years and above 40 years
2. Evidence of organ failure i.e heart failure, renal failure
3. No consent for study
4. Poor adherence to treatment and irregular visit to the clinic
5. Presence of chronic inflammation
6. Pregnancy
Minimum Eligible Age

14 Years

Maximum Eligible Age

40 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Lagos State University

OTHER

Sponsor Role lead

Responsible Party

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Dr. A. O. Dosunmu

CONSULTANT IN THE DEPARTMENT OF HAEMATOLOGY & BLOOD TRANSFUSION, LASUTH

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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A O Dosunmu, M.D.

Role: PRINCIPAL_INVESTIGATOR

Lagos State University

Locations

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Lagos State University Teaching Hospital

Ikeja, Lagos, Nigeria

Site Status RECRUITING

Countries

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Nigeria

Central Contacts

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A O Dosunmu, M.D.

Role: CONTACT

2348023369785

Facility Contacts

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A O Dosunmu, M.D.

Role: primary

2348023369785

References

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Brohan M, Jerkovic V, Collin S. Potentiality of red sorghum for producing stilbenoid-enriched beers with high antioxidant activity. J Agric Food Chem. 2011 Apr 27;59(8):4088-94. doi: 10.1021/jf1047755. Epub 2011 Mar 7.

Reference Type BACKGROUND
PMID: 21381750 (View on PubMed)

Geera B, Ojwang LO, Awika JM. New highly stable dimeric 3-deoxyanthocyanidin pigments from sorghum bicolor leaf sheath. J Food Sci. 2012 May;77(5):C566-72. doi: 10.1111/j.1750-3841.2012.02668.x. Epub 2012 Apr 10.

Reference Type BACKGROUND
PMID: 22489620 (View on PubMed)

Kayode AP, Nout MJ, Linnemann AR, Hounhouigan JD, Berghofer E, Siebenhandl-Ehn S. Uncommonly high levels of 3-deoxyanthocyanidins and antioxidant capacity in the leaf sheaths of dye sorghum. J Agric Food Chem. 2011 Feb 23;59(4):1178-84. doi: 10.1021/jf103963t. Epub 2011 Jan 25.

Reference Type BACKGROUND
PMID: 21322653 (View on PubMed)

Yang L, Browning JD, Awika JM. Sorghum 3-deoxyanthocyanins possess strong phase II enzyme inducer activity and cancer cell growth inhibition properties. J Agric Food Chem. 2009 Mar 11;57(5):1797-804. doi: 10.1021/jf8035066.

Reference Type BACKGROUND
PMID: 19256554 (View on PubMed)

Shih CH, Siu SO, Ng R, Wong E, Chiu LC, Chu IK, Lo C. Quantitative analysis of anticancer 3-deoxyanthocyanidins in infected sorghum seedlings. J Agric Food Chem. 2007 Jan 24;55(2):254-9. doi: 10.1021/jf062516t.

Reference Type BACKGROUND
PMID: 17227050 (View on PubMed)

Hunt DM, Emerson SU, Wagner RR. RNA- temperature-sensitive mutants of vesicular stomatitis virus: L-protein thermosensitivity accounts for transcriptase restriction of group I mutants. J Virol. 1976 May;18(2):596-603. doi: 10.1128/JVI.18.2.596-603.1976.

Reference Type BACKGROUND
PMID: 178900 (View on PubMed)

Burdette A, Garner PL, Mayer EP, Hargrove JL, Hartle DK, Greenspan P. Anti-inflammatory activity of select sorghum (Sorghum bicolor) brans. J Med Food. 2010 Aug;13(4):879-87. doi: 10.1089/jmf.2009.0147.

Reference Type BACKGROUND
PMID: 20673059 (View on PubMed)

Park JH, Darvin P, Lim EJ, Joung YH, Hong DY, Park EU, Park SH, Choi SK, Moon ES, Cho BW, Park KD, Lee HK, Kim MJ, Park DS, Chung IM, Yang YM. Hwanggeumchal sorghum induces cell cycle arrest, and suppresses tumor growth and metastasis through Jak2/STAT pathways in breast cancer xenografts. PLoS One. 2012;7(7):e40531. doi: 10.1371/journal.pone.0040531. Epub 2012 Jul 6.

Reference Type BACKGROUND
PMID: 22792362 (View on PubMed)

Wu L, Huang Z, Qin P, Yao Y, Meng X, Zou J, Zhu K, Ren G. Chemical characterization of a procyanidin-rich extract from sorghum bran and its effect on oxidative stress and tumor inhibition in vivo. J Agric Food Chem. 2011 Aug 24;59(16):8609-15. doi: 10.1021/jf2015528. Epub 2011 Jul 29.

Reference Type BACKGROUND
PMID: 21780844 (View on PubMed)

Awika JM, McDonough CM, Rooney LW. Decorticating sorghum to concentrate healthy phytochemicals. J Agric Food Chem. 2005 Aug 10;53(16):6230-4. doi: 10.1021/jf0510384.

Reference Type BACKGROUND
PMID: 16076098 (View on PubMed)

Gee L, Abbott J, Conway SP, Etherington C, Webb AK. Validation of the SF-36 for the assessment of quality of life in adolescents and adults with cystic fibrosis. J Cyst Fibros. 2002 Sep;1(3):137-45. doi: 10.1016/s1569-1993(02)00079-6.

Reference Type BACKGROUND
PMID: 15463820 (View on PubMed)

Okochi,V.I.,Okpuzor J, Okubena M.O., Awoyemi A.K. 2003 . The Influence of African Herbal Formula on the haematological parameters of trypanosome infected rats. African Journal of Biotechnology. 2 (9), 312-316.

Reference Type BACKGROUND

Erah P,O., Asonye C.C. Okhamafe A.O. 2003. Response of trypanosome brucei brucei induced anaemiato a commercialherbal preparation. African Journal of Biotechnology. 2,9, 307-311.

Reference Type BACKGROUND

Ogwumike OO. Hemopoietic effect of aqueous extract of the leaf sheath of Sorghum bicolor in albino rats. African Journal of Biomedical. Research. (2002): Vol 5; 69 - 71

Reference Type BACKGROUND

Oladiji AT, Jacob TO, Yakubu MT. Anti-anaemic potentials of aqueous extract of Sorghum bicolor (L.) moench stem bark in rats. J Ethnopharmacol. 2007 May 22;111(3):651-6. doi: 10.1016/j.jep.2007.01.013. Epub 2007 Jan 18.

Reference Type BACKGROUND
PMID: 17306481 (View on PubMed)

Akande IS, Oseni AA, Biobaku OA. Effects of aqueous extract of Sorghum bicolor on hepatic, histological and haematological indices in rats. Journal of Cell and Animal Biology 4(9), 137-142, 2010.

Reference Type BACKGROUND

Nwinyi FC, Kwanashie HO. Evaluation of aqueous methanolic extract of Sorghum bicolor leaf base for antinociceptive and anti-inflammatory activities. African Journal of Biotechnology, 8 (18), 4642-4649, 2009.

Reference Type BACKGROUND

Eniojukan JF, Bolajoko AA. Toxicological Profiles of Commercial Herbal Preperation, Jobelyn. International Journal of Health Research, 2(4), 369-374, 2009.

Reference Type BACKGROUND

USDA Database for the Oxygen Radical Absorbance Capacity (ORAC) of Selected Foods, Release 2, U.S. Department of Agriculture, 2010.

Reference Type BACKGROUND

Other Identifiers

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LASUTH/SCD01/2012

Identifier Type: -

Identifier Source: org_study_id

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