A Randomized Controlled Trial of an Online Support Group for Sexual Distress Due to Gynecologic Cancer

NCT ID: NCT01654458

Last Updated: 2021-03-18

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

NA

Total Enrollment

398 participants

Study Classification

INTERVENTIONAL

Study Start Date

2012-07-31

Study Completion Date

2019-09-30

Brief Summary

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There is a high prevalence of sexual and body image problems among women treated for gynecologic cancer, which can lead to considerable distress. Given the sensitive and highly personal nature of these problems, women are often reluctant to speak to their doctors about these concerns and have few resources for support and information. The research team will conduct a prospective randomized controlled trail (RCT) to test the benefits of "GyneGals," a 12-week online (i.e. Internet-based) support group intervention for women who are sexually distressed due to gynecologic cancer and its treatment.

The primary aim of this study is to determine whether a professionally-facilitated, information-rich, online support group is beneficial for women who are sexually distressed due to gynecologic cancer and the side effects of treatment.

Detailed Description

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Conditions

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Sexual Dysfunctions, Psychological Uterine Cervical Neoplasms Ovarian Neoplasms Uterine Neoplasms Genital Neoplasms, Female

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

SUPPORTIVE_CARE

Blinding Strategy

NONE

Study Groups

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Immediate Treatment Condition

Receives the 12-week GyneGals Support Group within a month of completing the baseline assessment.

Group Type EXPERIMENTAL

GyneGals Support Group

Intervention Type BEHAVIORAL

12-week online (i.e. Internet-based), professionally-facilitated support group

Waitlist Control Condition

Waitlist control group receives the 12-week GyneGals Support Group only after its involvement in the study has ended, as a courtesy.

Group Type NO_INTERVENTION

No interventions assigned to this group

Interventions

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GyneGals Support Group

12-week online (i.e. Internet-based), professionally-facilitated support group

Intervention Type BEHAVIORAL

Eligibility Criteria

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Inclusion Criteria

* Received surgical, radiation or chemotherapy treatments for any gynecologic cancer
* Not receiving active treatment
* Currently disease-free for a minimum of 3 months
* No more than 5 years post-diagnosis
* Distressed due to psychosexual concerns related to cancer
* Willing to discuss psychosexual concerns
* 18 years or older
* Has access to a computer and the Internet
* Speaks, reads, and writes in English
* Provides informed consent

Exclusion Criteria

* Acutely suicidal (i.e., actively suicidal within the previous 3 months)
* Has a major psychiatric illness
Minimum Eligible Age

18 Years

Eligible Sex

FEMALE

Accepts Healthy Volunteers

No

Sponsors

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University Health Network, Toronto

OTHER

Sponsor Role collaborator

Sunnybrook Health Sciences Centre

OTHER

Sponsor Role collaborator

Tom Baker Cancer Centre

OTHER

Sponsor Role collaborator

Cross Cancer Institute

OTHER

Sponsor Role collaborator

Vancouver Coastal Health Research Institute

OTHER

Sponsor Role collaborator

Memorial Sloan Kettering Cancer Center

OTHER

Sponsor Role collaborator

Women's College Hospital

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Catherine C. Classen, PhD

Role: PRINCIPAL_INVESTIGATOR

Women's College Hospital

Locations

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Memorial Sloan Kettering Cancer Center

New York, New York, United States

Site Status

Tom Baker Cancer Centre

Calgary, Alberta, Canada

Site Status

Cross Cancer Institute

Edmonton, Alberta, Canada

Site Status

Vancouver Coastal Health Research Institute

Vancouver, British Columbia, Canada

Site Status

Sunnybrook Health Sciences Centre

Toronto, Ontario, Canada

Site Status

University Health Network (Princess Margaret Hospital)

Toronto, Ontario, Canada

Site Status

Women's College Hospital

Toronto, Ontario, Canada

Site Status

Countries

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United States Canada

References

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Classen CC, Chivers ML, Urowitz S, Barbera L, Wiljer D, O'Rinn S, Ferguson SE. Psychosexual distress in women with gynecologic cancer: a feasibility study of an online support group. Psychooncology. 2013 Apr;22(4):930-5. doi: 10.1002/pon.3058. Epub 2012 Feb 28.

Reference Type BACKGROUND
PMID: 22374732 (View on PubMed)

Wiljer D, Urowitz S, Barbera L, Chivers ML, Quartey NK, Ferguson SE, To M, Classen CC. A qualitative study of an internet-based support group for women with sexual distress due to gynecologic cancer. J Cancer Educ. 2011 Sep;26(3):451-8. doi: 10.1007/s13187-011-0215-1.

Reference Type BACKGROUND
PMID: 21594587 (View on PubMed)

Classen CC, Drozd A, Brotto LA, Barbera L, Carter J, Chivers ML, Koval J, Robinson JW, Urowtiz S, Wiljer D, & Ferguson SE. Protocol of a randomized controlled trial of an online support group for sexual distress due to gynecologic caner. Journal of Clinical Trials 5(4), 2015. DOI: 10.4172/2167-0870.1000234

Reference Type BACKGROUND

Other Identifiers

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1009695

Identifier Type: OTHER

Identifier Source: secondary_id

12-0427-CE

Identifier Type: OTHER

Identifier Source: secondary_id

216-2012

Identifier Type: OTHER

Identifier Source: secondary_id

OVA-120243

Identifier Type: -

Identifier Source: org_study_id

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