Program of Integrated Care for Patients With Chronic Obstructive Pulmonary Disease and Multiple Comorbidities

NCT ID: NCT01648621

Last Updated: 2016-11-11

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

NA

Total Enrollment

470 participants

Study Classification

INTERVENTIONAL

Study Start Date

2012-08-31

Study Completion Date

2015-12-31

Brief Summary

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Many patients with chronic obstructive pulmonary disease (COPD) also have other diseases referred to as comorbidities. Often these patients require health care by a variety of health care professionals from services linked to hospitals and in the community. Unfortunately, sometimes it may be difficult for these patients to receive appropriate care in a timely manner resulting in a trip to the emergency department. As well, patients may benefit from education that enables them to recognize early signs indicating they are getting sicker and to self-manage their disease. Our study will examine a strategy that includes a case manager who will make weekly phone contact with COPD patients with comorbidity that present either to the emergency department or are admitted to hospital. Weekly contact will focus on teaching patients to recognize worsening symptoms and self-management strategies. The case manager will work with patients, caregivers, community health care providers and hospital specialists to promote communication and optimize care delivery. The investigators will examine the impact of our intervention on the need for emergency department visits and hospital admission. The investigators will also examine the impact on patients' health related quality of life, number of COPD exacerbations, and disease progression.

Detailed Description

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Conditions

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Chronic Obstructive Pulmonary Disease Multiple Comorbidity

Keywords

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COPD case management

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

PREVENTION

Blinding Strategy

NONE

Study Groups

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Case Management

In addition to usual care, the intervention group will receive case management that includes: 40 minute standardized education session, an individualized action plan, an individualized care plan for management of COPD and comorbidities, standardized reinforcement/motivational interviewing and action plan teach-back sessions and assessment of symptoms, progress and problems, and problem solving by phone weekly for 12 weeks, then monthly for 9 months (21 sessions), tele-home monitoring, coordinated and improved communication between the patient, family caregivers, family physicians, specialists, and CCAC facilitated by the case manager, priority access to ambulatory clinics.

Group Type EXPERIMENTAL

40 minute standardized education session

Intervention Type BEHAVIORAL

40 minute standardized education session based on the Living Well with COPD Patient's Education Tool on study enrolment to assess and improve understanding of disease and ability to monitor symptoms and recognize exacerbation

Individualized action plan

Intervention Type BEHAVIORAL

Individualized action plan using the Living Well with COPD template with patient individualized modification to address management strategies for exacerbation of comorbidity developed during the initial 40 minute session with case manager.

Individualized care plan

Intervention Type BEHAVIORAL

Individualized care plan for management of COPD and comorbidities developed by the case manager in consultation with family physician and specialists.

Standardized reinforcement/motivational interviewing and action plan teach-back sessions

Intervention Type BEHAVIORAL

Standardized reinforcement/motivational interviewing and action plan teach-back sessions based on Living Well with COPD modules as well as assessment of symptoms, progress and problems, and problem solving by phone weekly for 12 weeks, then monthly for 9 months (21 sessions) (telephone script; NOTE: case managers will make up to 3 attempts to contact participants during each week of the 12 weeks of weekly phone calls before determining inability to contact the participant for that week.

Tele-home monitoring

Intervention Type BEHAVIORAL

Tele-home monitoring of SpO2, weight, dyspnea, sputum quantity and characteristics, and general well-being for maximum of 6 months.

Inclusion criteria for tele-home monitoring:

a. compatible phone line b. patient consent c. patient or caregiver demonstrated ability to use monitoring equipment d. patient unable to attend outpatient/community appointments for assessment and monitoring because of environmental barriers to access (e.g. physician's office only accessible by stairs) e. severe dyspnea on activities of daily living (Medical Research Council Questionnaire for Assessing Severity of Breathlessness \[MRC\] Class 4 \& 5 or modified MRC \[mMRC\] 3 \& 4) f. frequent ED visits (\> 2) in last 12 months

5\. 12 weeks of clinical stability with no ED visits.

Coordinated and improved communication

Intervention Type BEHAVIORAL

Coordinated and improved communication between the patient, family caregivers, family physicians, specialists, and Community Care Access Centres (CCACs) facilitated by the case manager. This will include phone contact by case manager to family physicians and CCAC case manager if applicable after initial enrollment, education session and development of action plan, then monthly to report general status as well as after subsequent ED presentations/hospital admissions

Priority access

Intervention Type BEHAVIORAL

Priority access to ambulatory clinics (Respirology and other specialties as required including Psychiatry) facilitated through the case manager.

Dictated patient summary

Intervention Type BEHAVIORAL

Dictated patient summary sent by specialists (e.g. respirologists) to family physicians following each respiratory centre visit (every 12 weeks)

in-hospital rehabilitation/self-management program

Intervention Type BEHAVIORAL

Referral to an 8 week in-hospital rehabilitation and self-management education program for patients that are:

1. have had a recent exacerbation, but are now clinically stable;
2. symptomatic COPD including reduced activity levels and increased dyspnea despite pharmacological treatment;
3. have stabilized comorbidity (no evidence of active ischemic, musculoskeletal, psychiatric or other systemic disease); and
4. have sufficient motivation to participate.

Smoking cessation

Intervention Type BEHAVIORAL

Referral to a smoking cessation program (as applicable)

Usual care

Usual care for these patients comprises: Dictated patient summary, referral to an 8 week in-hospital rehabilitation and self-management education program, referral to a smoking cessation program (as applicable), individualized action plan developed with treating respirologist at the discretion of the attending respirologist, Referral to web based educational materials and resources.

Group Type ACTIVE_COMPARATOR

Dictated patient summary

Intervention Type BEHAVIORAL

Dictated patient summary sent by specialists (e.g. respirologists) to family physicians following each respiratory centre visit (every 12 weeks)

in-hospital rehabilitation/self-management program

Intervention Type BEHAVIORAL

Referral to an 8 week in-hospital rehabilitation and self-management education program for patients that are:

1. have had a recent exacerbation, but are now clinically stable;
2. symptomatic COPD including reduced activity levels and increased dyspnea despite pharmacological treatment;
3. have stabilized comorbidity (no evidence of active ischemic, musculoskeletal, psychiatric or other systemic disease); and
4. have sufficient motivation to participate.

Smoking cessation

Intervention Type BEHAVIORAL

Referral to a smoking cessation program (as applicable)

Action plan Respirologist

Intervention Type BEHAVIORAL

Individualized action plan developed with treating respirologist at the discretion of the attending respirologist.

Web based self management materials

Intervention Type BEHAVIORAL

Referral to educational materials and resources (Living Well with COPD module printouts provided during COPD rehabilitation classes at a cost to the individual)

Interventions

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40 minute standardized education session

40 minute standardized education session based on the Living Well with COPD Patient's Education Tool on study enrolment to assess and improve understanding of disease and ability to monitor symptoms and recognize exacerbation

Intervention Type BEHAVIORAL

Individualized action plan

Individualized action plan using the Living Well with COPD template with patient individualized modification to address management strategies for exacerbation of comorbidity developed during the initial 40 minute session with case manager.

Intervention Type BEHAVIORAL

Individualized care plan

Individualized care plan for management of COPD and comorbidities developed by the case manager in consultation with family physician and specialists.

Intervention Type BEHAVIORAL

Standardized reinforcement/motivational interviewing and action plan teach-back sessions

Standardized reinforcement/motivational interviewing and action plan teach-back sessions based on Living Well with COPD modules as well as assessment of symptoms, progress and problems, and problem solving by phone weekly for 12 weeks, then monthly for 9 months (21 sessions) (telephone script; NOTE: case managers will make up to 3 attempts to contact participants during each week of the 12 weeks of weekly phone calls before determining inability to contact the participant for that week.

Intervention Type BEHAVIORAL

Tele-home monitoring

Tele-home monitoring of SpO2, weight, dyspnea, sputum quantity and characteristics, and general well-being for maximum of 6 months.

Inclusion criteria for tele-home monitoring:

a. compatible phone line b. patient consent c. patient or caregiver demonstrated ability to use monitoring equipment d. patient unable to attend outpatient/community appointments for assessment and monitoring because of environmental barriers to access (e.g. physician's office only accessible by stairs) e. severe dyspnea on activities of daily living (Medical Research Council Questionnaire for Assessing Severity of Breathlessness \[MRC\] Class 4 \& 5 or modified MRC \[mMRC\] 3 \& 4) f. frequent ED visits (\> 2) in last 12 months

5\. 12 weeks of clinical stability with no ED visits.

Intervention Type BEHAVIORAL

Coordinated and improved communication

Coordinated and improved communication between the patient, family caregivers, family physicians, specialists, and Community Care Access Centres (CCACs) facilitated by the case manager. This will include phone contact by case manager to family physicians and CCAC case manager if applicable after initial enrollment, education session and development of action plan, then monthly to report general status as well as after subsequent ED presentations/hospital admissions

Intervention Type BEHAVIORAL

Priority access

Priority access to ambulatory clinics (Respirology and other specialties as required including Psychiatry) facilitated through the case manager.

Intervention Type BEHAVIORAL

Dictated patient summary

Dictated patient summary sent by specialists (e.g. respirologists) to family physicians following each respiratory centre visit (every 12 weeks)

Intervention Type BEHAVIORAL

in-hospital rehabilitation/self-management program

Referral to an 8 week in-hospital rehabilitation and self-management education program for patients that are:

1. have had a recent exacerbation, but are now clinically stable;
2. symptomatic COPD including reduced activity levels and increased dyspnea despite pharmacological treatment;
3. have stabilized comorbidity (no evidence of active ischemic, musculoskeletal, psychiatric or other systemic disease); and
4. have sufficient motivation to participate.

Intervention Type BEHAVIORAL

Smoking cessation

Referral to a smoking cessation program (as applicable)

Intervention Type BEHAVIORAL

Action plan Respirologist

Individualized action plan developed with treating respirologist at the discretion of the attending respirologist.

Intervention Type BEHAVIORAL

Web based self management materials

Referral to educational materials and resources (Living Well with COPD module printouts provided during COPD rehabilitation classes at a cost to the individual)

Intervention Type BEHAVIORAL

Eligibility Criteria

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Inclusion Criteria

* COPD defined as chronic irreversible airflow limitation with FEV1 \< lower limit of normal for age as % predicted and a FEV1/FVC ratio \< than lower limit of normal (usually 70%) \[5\]

Plus ≥ 2 comorbidities commonly associated with COPD as identified in the Canadian Thoracic Society COPD guidelines\*

1. Cardiovascular disease
2. Osteopenia and osteoporosis
3. Glaucoma and cataracts
4. Cachexia and malnutrition
5. Peripheral muscle dysfunction
6. Lung cancer
7. Metabolic syndrome (diabetes mellitus)
8. Depression
9. Chronic kidney disease OR Other conditions as primary admitting/presenting diagnosis + COPD as significant comorbidity + ≥ 1 other comorbidity

THAT

1. Get admitted to participating hospital; or
2. Present to participating hospital ED; or
3. Have first referral to Respiratory Centre/Respirology team

AND HAVE

1. ≥ 1 ED presentation/hospital admission in previous 12 months
2. ≥ 50 years age

Exclusion Criteria

1. No access to primary care physician
2. Primary diagnosis of asthma
3. Terminal diagnosis (metastatic disease with a life expectancy of ≤ 6 months)
4. Dementia and absence of family caregiver able to assist with activation of the action plan and feedback on ongoing status and care coordination
5. Uncontrolled psychiatric illness
6. Inability to understand, read, and write English
7. No access to a phone
8. Inability to attend follow up at one of the participating sites
Minimum Eligible Age

50 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Southlake Regional Health Centre

OTHER

Sponsor Role collaborator

University of Toronto

OTHER

Sponsor Role collaborator

Ontario Ministry of Health and Long Term Care

OTHER_GOV

Sponsor Role collaborator

Michael Garron Hospital

OTHER

Sponsor Role lead

Responsible Party

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Louise Rose

Director of Research, Prolonged ventilation Weaning Centre

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Louise Rose, PhD

Role: PRINCIPAL_INVESTIGATOR

Toronto East General Hospital/University of Toronto

Ian Fraser, MD

Role: PRINCIPAL_INVESTIGATOR

Michael Garron Hospital

Locations

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Southlake Regional Heath Centre

Newmarket, Ontario, Canada

Site Status

Toronto East General Hospital

Toronto, Ontario, Canada

Site Status

Countries

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Canada

References

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Poot CC, Meijer E, Kruis AL, Smidt N, Chavannes NH, Honkoop PJ. Integrated disease management interventions for patients with chronic obstructive pulmonary disease. Cochrane Database Syst Rev. 2021 Sep 8;9(9):CD009437. doi: 10.1002/14651858.CD009437.pub3.

Reference Type DERIVED
PMID: 34495549 (View on PubMed)

Rose L, Istanboulian L, Carriere L, Thomas A, Lee HB, Rezaie S, Shafai R, Fraser I. Program of Integrated Care for Patients with Chronic Obstructive Pulmonary Disease and Multiple Comorbidities (PIC COPD+): a randomised controlled trial. Eur Respir J. 2018 Jan 11;51(1):1701567. doi: 10.1183/13993003.01567-2017. Print 2018 Jan.

Reference Type DERIVED
PMID: 29326330 (View on PubMed)

Other Identifiers

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TEGH001 PIC COPD

Identifier Type: -

Identifier Source: org_study_id