Belimumab (BENLYSTA®) Pregnancy Registry

NCT ID: NCT01532310

Last Updated: 2025-06-10

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

77 participants

Study Classification

OBSERVATIONAL

Study Start Date

2012-07-16

Study Completion Date

2022-11-11

Brief Summary

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This global Belimumab Pregnancy Registry will collect prospective data on pregnancies and pregnancy outcomes on a voluntary basis in women with systemic lupus erythematosus (SLE) who have received commercially supplied belimumab within the 4 months prior to and/or during pregnancy. The registry will also evaluate outcomes of infants born to mothers who were exposed to belimumab within the 4 months prior to and/or during pregnancy. This registry will add to the current clinical experience with belimumab and will complement reproductive data from animal toxicology studies. It will also assist clinicians in weighing the potential risks against the benefits of treatment for individual patients with SLE. GlaxoSmithKline (GSK) will sponsor the Belimumab Pregnancy Registry in countries where it holds Marketing Authorization.

Detailed Description

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Conditions

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Systemic Lupus Erythematosus

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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Pregnant women taking belimumab

Any women with belimumab exposure within the 4 months prior to and/or during pregnancy

belimumab

Intervention Type DRUG

Belimumab is a recombinant, human, IgG1λ monoclonal antibody for the treatment of systemic lupus erythematosus

Infants

Infants through the first year of life whose mothers were exposed to belimumab during pregnancy

belimumab

Intervention Type DRUG

Belimumab is a recombinant, human, IgG1λ monoclonal antibody for the treatment of systemic lupus erythematosus

Interventions

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belimumab

Belimumab is a recombinant, human, IgG1λ monoclonal antibody for the treatment of systemic lupus erythematosus

Intervention Type DRUG

Eligibility Criteria

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Inclusion Criteria

* Pregnant women containing sufficient evidence to confirm that exposure to commercially supplied belimumab occurred within the 4 months prior to and/or during pregnancy
* Pregnant women with sufficient information to classify the pregnancy as prospective or retrospective (ie,whether the outcome of pregnancy was known at the time of first contact with the registry)
* Pregnant women with full contact information to allow for follow-up (name, address, telephone number/email address) and contact information for applicable HCPs if initial reporter is the pregnant woman
* Consent provided by the pregnant woman for her participation and assent for participation of her infant.
Eligible Sex

FEMALE

Accepts Healthy Volunteers

No

Sponsors

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PPD Development, LP

INDUSTRY

Sponsor Role collaborator

GlaxoSmithKline

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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GSK Clinical Trials

Role: STUDY_DIRECTOR

GlaxoSmithKline

Locations

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GSK Investigational Site

Wilmington, North Carolina, United States

Site Status

GSK Investigational Site

Wilmington, North Carolina, United States

Site Status

GSK Investigational Site

Innsbruck, , Austria

Site Status

GSK Investigational Site

Liège, , Belgium

Site Status

GSK Investigational Site

Québec, Quebec, Canada

Site Status

GSK Investigational Site

Paris, , France

Site Status

GSK Investigational Site

Düsseldorf, , Germany

Site Status

GSK Investigational Site

Tel Litwinsky, , Israel

Site Status

GSK Investigational Site

Pisa, , Italy

Site Status

GSK Investigational Site

Almada, , Portugal

Site Status

GSK Investigational Site

Bilbao, , Spain

Site Status

GSK Investigational Site

Stockholm, , Sweden

Site Status

GSK Investigational Site

Bern, , Switzerland

Site Status

GSK Investigational Site

Sankt Gallen, , Switzerland

Site Status

GSK Investigational Site

Zurich, , Switzerland

Site Status

Countries

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United States Austria Belgium Canada France Germany Israel Italy Portugal Spain Sweden Switzerland

References

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Juliao P, Wurst K, Pimenta JM, Gemzoe K, Landy H, Moody MA, Tilson H, Covington D, Moore T, Marino R, Gilbride J, Liu A, Meizlik P, Petri M. Belimumab use during pregnancy: Interim results of the belimumab pregnancy registry. Birth Defects Res. 2023 Jan 15;115(2):188-204. doi: 10.1002/bdr2.2091. Epub 2022 Sep 30.

Reference Type BACKGROUND
PMID: 36177676 (View on PubMed)

Related Links

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http://pregnancyregistry.gsk.com/belimumab.html

Belimumab pregnancy registry/GlaxoSmithKline pregnancy registries

Other Identifiers

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WEUKBRE6076

Identifier Type: OTHER

Identifier Source: secondary_id

114256

Identifier Type: -

Identifier Source: org_study_id

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