Pacing Activity Self-management for Patients With Chronic Fatigue Syndrome

NCT ID: NCT01512342

Last Updated: 2015-12-17

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

PHASE2

Total Enrollment

33 participants

Study Classification

INTERVENTIONAL

Study Start Date

2011-08-31

Study Completion Date

2014-08-31

Brief Summary

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Given the lack of evidence in support of pacing self-management for patients with chronic fatigue syndrome (CFS), it is examined whether physical behavior and health status of patients with CFS improve in response to a pacing self-management program. The effects of pacing will be compared with those observed when applying relaxation therapy to patients with CFS.

Detailed Description

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Given the lack of evidence in support of pacing self-management for patients with chronic fatigue syndrome (CFS), it is examined whether physical behavior and health status of patients with CFS improve in response to a pacing self-management program. The effects of pacing will be compared with those observed when applying relaxation therapy to patients with CFS.

According to the power calculation, 36 patients fulfilling the 1994 Centre for Disease Control and Prevention criteria for the diagnosis of chronic fatigue syndrome (CFS) will be randomized to either 3 weeks of pacing activity self-management or relaxation therapy. Both treatment groups will receive 3 weekly sessions spread over 3 consecutive weeks. All treatments will be delivered by occupational therapists or physiotherapists. One treatment session lasts for about 45 minutes each.

Outcome measures include the Canadian Occupational Performance Measure (COPM), Medical Outcomes Short Form 37 Health Status Survey (SF-36), Checklist Individual Strength (CIS), CFS Symptom List and autonomic activity at rest and following 3 activities of daily living (writing a standardized test on a laptop computer, ironing, and climbing 26 flights of stairs). For measuring autonomic activity, the Nexus 10 device (Mind Media, the Netherlands) will be used. Skin conductance, body temperature, heart rate, blood volume pressure and heart rate variability will be measured continuously in real time during a 2 minutes period, with the patient sitting on a chair (back supported and hands resting on legs). Electrodes will be placed on the left hand in all patients.

Conditions

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Chronic Fatigue Syndrome

Keywords

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pacing activity management relaxation physiotherapy occupational therapy autonomic nervous system

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

TREATMENT

Blinding Strategy

DOUBLE

Investigators Outcome Assessors

Study Groups

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Pacing

The pacing self-management program focussed on teaching the patient to estimate their current physical capabilities prior to commencing an activity. In order to appropriately pace activities (daily activities and exercise bouts), CFS patients were learned to estimate their current physical capabilities prior to commencing an activity, keeping in mind the regular fluctuating nature of their symptoms. The activity duration used within the program was less than that reported by the patient so to account for typical overestimations made by the patient. Each activity block was interspersed with breaks, with the length of this break equating to the duration of the activity.

Group Type EXPERIMENTAL

Pacing

Intervention Type BEHAVIORAL

3 one-on-one sessions weekly for 3 consecutive weeks

relaxation therapy

Relaxation therapy comprised of education about the role of stress in CFS biology, and the opportunities stress management provides to handle this issue. Patients were then taught how to apply stress management techniques like Jacobson relaxation skills, Schultz relaxation skills, visualization, etc.

Group Type ACTIVE_COMPARATOR

relaxation therapy

Intervention Type BEHAVIORAL

3 one-on-one sessions weekly for 3 consecutive weeks

Interventions

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Pacing

3 one-on-one sessions weekly for 3 consecutive weeks

Intervention Type BEHAVIORAL

relaxation therapy

3 one-on-one sessions weekly for 3 consecutive weeks

Intervention Type BEHAVIORAL

Other Intervention Names

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activity self-management activity management adaptive pacing stress managament Jacobson relaxation visualisation Schultz relaxation

Eligibility Criteria

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Inclusion Criteria

* adult
* age range between 18 and 65 years of age
* female gender
* willing to sign informed consent form
* fulfilling the 1994 Centre for Disease Control and Prevention criteria for the diagnosis of chronic fatigue syndrome
Minimum Eligible Age

18 Years

Maximum Eligible Age

65 Years

Eligible Sex

FEMALE

Accepts Healthy Volunteers

No

Sponsors

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Artesis University College, Antwerp

OTHER

Sponsor Role collaborator

Universiteit Antwerpen

OTHER

Sponsor Role collaborator

University Hospital, Antwerp

OTHER

Sponsor Role collaborator

Vrije Universiteit Brussel

OTHER

Sponsor Role lead

Responsible Party

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Jo Nijs

Associate professor

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Daphne Kos, PhD

Role: STUDY_DIRECTOR

Artesis University College Antwerp, Belgium

Locations

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University Hospital Antwerp

Antwerp, , Belgium

Site Status

Countries

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Belgium

References

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Nijs J, van Eupen I, Vandecauter J, Augustinus E, Bleyen G, Moorkens G, Meeus M. Can pacing self-management alter physical behavior and symptom severity in chronic fatigue syndrome? A case series. J Rehabil Res Dev. 2009;46(7):985-96. doi: 10.1682/jrrd.2009.01.0007.

Reference Type BACKGROUND
PMID: 20104421 (View on PubMed)

Nijs J, Paul L, Wallman K. Chronic fatigue syndrome: an approach combining self-management with graded exercise to avoid exacerbations. J Rehabil Med. 2008 Apr;40(4):241-7. doi: 10.2340/16501977-0185.

Reference Type BACKGROUND
PMID: 18382818 (View on PubMed)

Meeus M, van Eupen I, van Baarle E, De Boeck V, Luyckx A, Kos D, Nijs J. Symptom fluctuations and daily physical activity in patients with chronic fatigue syndrome: a case-control study. Arch Phys Med Rehabil. 2011 Nov;92(11):1820-6. doi: 10.1016/j.apmr.2011.06.023.

Reference Type BACKGROUND
PMID: 22032215 (View on PubMed)

Larun L, Brurberg KG, Odgaard-Jensen J, Price JR. Exercise therapy for chronic fatigue syndrome. Cochrane Database Syst Rev. 2024 Dec 19;12(12):CD003200. doi: 10.1002/14651858.CD003200.pub9.

Reference Type DERIVED
PMID: 39697147 (View on PubMed)

Related Links

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http://www.paininmotion.be

International Pain in Motion research group

Other Identifiers

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Artesis University College

Identifier Type: OTHER

Identifier Source: secondary_id

PacingCFS

Identifier Type: -

Identifier Source: org_study_id