Trial Outcomes & Findings for SLOS: The Effect of Simvastatin in Patients Receiving Cholesterol Supplementation (NCT NCT01434745)

NCT ID: NCT01434745

Last Updated: 2019-10-01

Results Overview

neurocognitive assessment measured with Mullen Scales of Learning

Recruitment status

TERMINATED

Study phase

NA

Target enrollment

1 participants

Primary outcome timeframe

through study completion, an average of 2 per year

Results posted on

2019-10-01

Participant Flow

Only one participant enrolled

Participant milestones

Participant milestones
Measure
Placebo - Lactose
Placebo-Lactose Lactose: Lactose will be administered in a capsule formula.
Simvastatin
0.5 mg/kg body weight/day Simvastatin: Simvastatin will be administered as a powder mixed with lactose at the dose of 0.5 mg/kg/day
Overall Study
STARTED
0
0
Overall Study
COMPLETED
0
0
Overall Study
NOT COMPLETED
0
0

Reasons for withdrawal

Withdrawal data not reported

Baseline Characteristics

SLOS: The Effect of Simvastatin in Patients Receiving Cholesterol Supplementation

Baseline characteristics by cohort

Baseline data not reported

PRIMARY outcome

Timeframe: through study completion, an average of 2 per year

Population: No funding

neurocognitive assessment measured with Mullen Scales of Learning

Outcome measures

Outcome data not reported

SECONDARY outcome

Timeframe: end of treatment, an average of 1 per year

Population: Analyses were not completed and will never be completed due to insufficient funding

administration of cholesterol and water labeled with stable isotope followed by measurement overtime in blood concentrations

Outcome measures

Outcome data not reported

SECONDARY outcome

Timeframe: through study completion, an average of 2 per year

Population: Analyses were not completed and will never be completed due to insufficient funding

Blood cholesterol to 7-dehydrocholesterol ratio

Outcome measures

Outcome data not reported

SECONDARY outcome

Timeframe: end of treatment, an average of 1 per year

Population: Analyses were not completed and will never be completed due to insufficient funding

Apparent diffusion coefficient measured by brain diffusion tensor imaging (DTI)

Outcome measures

Outcome data not reported

SECONDARY outcome

Timeframe: through study completion, an average of 2 per year

Population: Analyses were not completed and will never be completed due to insufficient funding

urinary mevalonate excretion

Outcome measures

Outcome data not reported

SECONDARY outcome

Timeframe: end of treatment, an average of 1 per year

Population: Analyses were not completed and will never be completed due to insufficient funding

Brain magnetic resonance spectroscopy

Outcome measures

Outcome data not reported

SECONDARY outcome

Timeframe: end of treatment, an average of 1 per year

Population: Analyses were not completed and will never be completed due to insufficient funding

Fractional anisotropy as measured by brain diffusion tensor imaging (DTI)

Outcome measures

Outcome data not reported

Adverse Events

Placebo - Lactose

Serious events: 0 serious events
Other events: 0 other events
Deaths: 0 deaths

Simvastatin

Serious events: 0 serious events
Other events: 0 other events
Deaths: 0 deaths

Serious adverse events

Adverse event data not reported

Other adverse events

Adverse event data not reported

Additional Information

Dr. jean-Baptiste Roullet

Washington State University

Phone: 5093587666

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place