FUTURE 3 Study Extension

NCT ID: NCT01338415

Last Updated: 2025-03-30

Study Results

Results available

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Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

PHASE3

Total Enrollment

58 participants

Study Classification

INTERVENTIONAL

Study Start Date

2011-03-08

Study Completion Date

2020-05-29

Brief Summary

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The objectives of the FUTURE 3 Study Extension are to evaluate the long-term safety, tolerability and efficacy of the pediatric formulation of bosentan two versus three times a day in children with Pulmonary Arterial Hypertension (PAH).

Detailed Description

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Conditions

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Pulmonary Arterial Hypertension

Study Design

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Allocation Method

NON_RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

TREATMENT

Blinding Strategy

NONE

Study Groups

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bosentan 2mg/kg b.i.d.

Patients who received 2 mg/kg bosentan twcie daily (b.i.d.) during the FUTURE 3 core study and continued with the same dose regimen during the extension study

Group Type EXPERIMENTAL

Bosentan

Intervention Type DRUG

Oral dispersible tablet administered as 2mg/kg two (b.i.d.) or three (t.i.d.) times per day

bosentan 2mg/kg t.i.d.

Patients who received 2 mg/kg bosentan 3 times a day (t.i.d.) during the FUTURE 3 core study and continued with the same dose regimen during the extension study

Group Type EXPERIMENTAL

Bosentan

Intervention Type DRUG

Oral dispersible tablet administered as 2mg/kg two (b.i.d.) or three (t.i.d.) times per day

Interventions

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Bosentan

Oral dispersible tablet administered as 2mg/kg two (b.i.d.) or three (t.i.d.) times per day

Intervention Type DRUG

Other Intervention Names

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ACT-050088

Eligibility Criteria

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Inclusion Criteria

1. Patients who completed the FUTURE 3 core study (AC-052-373) or prematurely discontinued due to PAH-progression, if bosentan was not permanently discontinued
2. Patients who tolerated bosentan pediatric formulation and for whom bosentan is considered beneficial at the end of the FUTURE 3 core study (AC-052-373)
3. Signed informed consent by the parents or the legal representatives prior to any study-mandated procedure.

Exclusion Criteria

1. Known intolerance or hypersensitivity to bosentan or any of the excipients of the dispersible bosentan tablet
2. Any clinically significant laboratory abnormality that precludes continuation of bosentan therapy
3. Pregnancy
4. AST and/or ALT values \> 3 times the upper limit of normal range (ULN)
5. Moderate to severe hepatic impairment, i.e., Child-Pugh Class B or C
6. Premature and permanent study drug discontinuation during the FUTURE 3 core study (AC-052-373)
7. Any major violation of the FUTURE 3 core study (AC-052-373) protocol.
Minimum Eligible Age

3 Months

Maximum Eligible Age

12 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Actelion

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Locations

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The Children's Hospital - Site 9102

Aurora, Colorado, United States

Site Status

Children's National Medical Center - Site 9104

Washington D.C., District of Columbia, United States

Site Status

Columbia University Medical Center Children's Hospital of New York Presbyterian - Site 9101

New York, New York, United States

Site Status

Royal Children's Hospital Melbourne, Cardiology - Site 5001

Parkville, , Australia

Site Status

The Republican Scientific-Practical Center "Cardiology" - Site 3001

Minsk, , Belarus

Site Status

Cardiovascular Institute and Fuwai Hospital

Beijing, , China

Site Status

Shanghai Children's Medical Center - Site 5102

Shanghai, , China

Site Status

Fakultní nemocnice v Motole, dětské kardiocentrum - Site 3301

Prague, , Czechia

Site Status

Hopital Necker-Enfants Malades, Service de Cardiologie Pédiatrique - Site 2201

Paris, , France

Site Status

CHU de Toulouse - Hôpital des Enfants, Service de Cardiologie Pédiatrique - Site 2202

Toulouse, , France

Site Status

Deutsches Herzzentrum Kinderkardiologie - Site 1401

Berlin, , Germany

Site Status

Universitätsklinikum Bonn Abteilung für Kinderkardiologie - Site 1404

Bonn, , Germany

Site Status

Justus-Liebig-Universität Giessen, Kinderherzzentrum - Site 1403

Giessen, , Germany

Site Status

Gottsegen György Országos Kardiológiai Intézet, Gyermekszív Központ, Gyermek Kardiológiai osztály - Site 3401

Budapest, , Hungary

Site Status

Szegedi Tudományegyetem ÁOK Szent-Györgyi Albert Klinikai Központ, Gyermekgyógyászati Klinika és Gyermekegészségügyi Központ - Site 3402

Szeged, , Hungary

Site Status

CARE Hospitals, Cardiology Dep. Hyderabad - Site 5302

Hyderabad, , India

Site Status

Schneider Children's Medical Center- Institute of pediatric cardiology - Site 7101

Petach Tikvah, , Israel

Site Status

Università Degli Studi di Padova - Dipartimento di Pediatria - Servizio di Cardiologia Pediatrica - Site 1501

Padua, , Italy

Site Status

Ospedale Pediatrico "Bambino Gesù" - Dipartimento Medico Chirurgico di Cardiologia Pediatrica - Site 1502

Rome, , Italy

Site Status

Instituto Nacional de Cardiologia (INC) Ignacio Chavez - Site 8401

Mexico City, , Mexico

Site Status

Uniwersyteckie Centrum Kliniczne Klinika Kardiologii Dziecięcej i Wad Wrodzonych Serca - Site 3604

Gdansk, , Poland

Site Status

Wojewódzki Szpital Specjalistyczny we Wrocławiu Oddział Kardiologii Dziecięcej z pododdziałem Intensywnego Nadzoru Kardiologicznego - Site 3605

Wroclaw, , Poland

Site Status

RAMS Institution, Research Institute for complex issues of cardiovascular diseases, Siberian branch of the Russian Academy of Medical Sciences - Site 3805

Kemerovo, , Russia

Site Status

Scientific Center of Cardiovascular Surgery named after A.N.Bakulev of the RAMS - Site 3803

Moscow, , Russia

Site Status

Moscow Scientific Research Institute for Pediatrics and Childrens Surgery of Rosmedtechnologies - Site 3804

Moscow, , Russia

Site Status

Federal State Institution "Federal center of Heart, Blood and Endocrinology named after V.A.Almazov Rosmedtekhnologies" - Site 3802

Saint Petersberg, , Russia

Site Status

State Educational Institution of Higher Professional Education "Saint Petersburg State Pediatric Medical Academy of Roszdrav" - Site 3801

Saint Petersburg, , Russia

Site Status

Univerzitetska dečja klinika, Služba za kardiologiju - Site 3901

Belgrade, , Serbia

Site Status

Institut za zdravstvenu zaštitu majke i deteta Srbije "Dr Vukan Čupić", Služba za ispitivanje i lečenje bolesti srca i krvnih sudova - Site 3902

Belgrade, , Serbia

Site Status

Department of Paediatric Cardiology University of the Free State - Site 6001

Bloemfontein, , South Africa

Site Status

Division of Paediatric Cardiology, Steve Biko Academic Hospital - Site 6002

Pretoria, , South Africa

Site Status

Hospital Universitatario Vall d'Hebron, Neumologia - Site 1907

Barcelona, , Spain

Site Status

Hospital Universitario La Paz - Paediatric Cardiology Department - Site 1906

Madrid, , Spain

Site Status

Clinical Diagnostic Center - Pediatric Cardiovascular and ANES and Intensive Care Department - Site 4103

Dnipro, , Ukraine

Site Status

Gusak Ins Urgent and Recovery SUR AMS - Cardiovascular Rehabilitation Pediatric Department - Site 4101

Donetsk, , Ukraine

Site Status

Gover INS - Scientific Practical Cardiovascular Pediatric Center - MOH Ukraine - Site 4102

Kiev, , Ukraine

Site Status

Countries

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United States Australia Belarus China Czechia France Germany Hungary India Israel Italy Mexico Poland Russia Serbia South Africa Spain Ukraine

Other Identifiers

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2010-021793-12

Identifier Type: EUDRACT_NUMBER

Identifier Source: secondary_id

AC-052-374

Identifier Type: -

Identifier Source: org_study_id

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