The TOBY Children Study

NCT ID: NCT01092637

Last Updated: 2016-01-21

Study Results

Results available

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Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

280 participants

Study Classification

OBSERVATIONAL

Study Start Date

2009-09-30

Study Completion Date

2014-07-31

Brief Summary

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The aim of this study is to determine the efficacy of therapeutic hypothermia following perinatal asphyxia on neurological and neuropsychological outcomes and also to assess academic attainment and any additional health, societal or educational costs associated with changes in outcome as a result of the intervention. This study will determine whether the apparent initial benefits of cooling are maintained in the longer term.

Perinatal asphyxia (a lack of oxygen occurring around the time of birth) may have long term consequences on brain functioning, which may be altered by treatment with hypothermia (cooling). Currently, there is no information on the effect of cooling on outcome beyond 18 months of age. We intend to assess at 6 - 7 years of age, the children that participated in the TOBY trial of whole body cooling following perinatal asphyxia and compare between the children that had received the cooling treatment soon after birth and those that were not treated with cooling, the number that survived with an intelligence quotient (IQ) greater than 84, the presence and severity of disabilities, educational attainment and the economic impact on families and service providers. If possible, children will be assessed in their school, with the option of alternative venues such as home or clinic if required.

During the assessment a paediatrician will conduct a neurological examination. A psychologist will administer psychometric tests to evaluate cognitive, behavioural and motor development. Questionnaires completed by parents and teachers will complete the data collection. Economic factors will also be assessed in the parent questionnaire.

Each child will have contact with the assessors during one school day with appropriate breaks. Assessments will take place over a period of 3 years.

Detailed Description

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* Assessment tools used:

* Wechsler Preschool and Primary Scale of Intelligence Third Edition (WPPSI-III; 2004) or Wechsler Intelligence Scales for Children
* NEPSY Second Edition
* Working Memory Test Battery for Children
* Neurological examination by paediatrician
* Questionnaire data from parents/guardians and teachers

Conditions

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Cerebral Palsy Hypoxia-Ischemia, Brain

Study Design

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Observational Model Type

COHORT

Study Time Perspective

CROSS_SECTIONAL

Study Groups

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Cooled

Child was allocated standard intensive care plus moderate whole body hypothermia treatment within 6 hours of birth

No interventions assigned to this group

Non-cooled

Child was allocated standard intensive care only within 6 hours of birth

No interventions assigned to this group

Eligibility Criteria

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Inclusion Criteria

* participant in the TOBY Study

Exclusion Criteria

* previously documented instruction not to approach for inclusion in further TOBY projects
Minimum Eligible Age

72 Months

Maximum Eligible Age

87 Months

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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University of Oxford

OTHER

Sponsor Role collaborator

Imperial College London

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Denis Azzopardi, MD FRCPCH

Role: PRINCIPAL_INVESTIGATOR

Imperial College London

Locations

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Imperial College London

London, , United Kingdom

Site Status

Countries

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United Kingdom

References

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Azzopardi D, Strohm B, Marlow N, Brocklehurst P, Deierl A, Eddama O, Goodwin J, Halliday HL, Juszczak E, Kapellou O, Levene M, Linsell L, Omar O, Thoresen M, Tusor N, Whitelaw A, Edwards AD; TOBY Study Group. Effects of hypothermia for perinatal asphyxia on childhood outcomes. N Engl J Med. 2014 Jul 10;371(2):140-9. doi: 10.1056/NEJMoa1315788.

Reference Type RESULT
PMID: 25006720 (View on PubMed)

Rivero-Arias O, Eddama O, Azzopardi D, Edwards AD, Strohm B, Campbell H. Hypothermia for perinatal asphyxia: trial-based resource use and costs at 6-7 years. Arch Dis Child Fetal Neonatal Ed. 2019 May;104(3):F285-F292. doi: 10.1136/archdischild-2017-314685. Epub 2018 Jul 11.

Reference Type DERIVED
PMID: 29997167 (View on PubMed)

Campbell H, Eddama O, Azzopardi D, Edwards AD, Strohm B, Rivero-Arias O. Hypothermia for perinatal asphyxia: trial-based quality of life at 6-7 years. Arch Dis Child. 2018 Jul;103(7):654-659. doi: 10.1136/archdischild-2017-313733. Epub 2018 Mar 6.

Reference Type DERIVED
PMID: 29510998 (View on PubMed)

Other Identifiers

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G0801320

Identifier Type: OTHER_GRANT

Identifier Source: secondary_id

ISRCTN89547571

Identifier Type: -

Identifier Source: org_study_id

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