A Standardized Nursing Intervention Protocol for HCT Patients

NCT ID: NCT00951626

Last Updated: 2015-06-08

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

NA

Total Enrollment

282 participants

Study Classification

INTERVENTIONAL

Study Start Date

2005-09-30

Study Completion Date

2011-09-30

Brief Summary

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RATIONALE: Visiting patients at home to teach them about self care after a stem cell transplant may be more effective than standard therapy in improving quality of life.

PURPOSE: This clinical trial is studying home visits to see how well they work compared with standard therapy in treating patients undergoing donor stem cell transplant for hematologic cancer.

Detailed Description

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OBJECTIVES:

Primary

* Test the effects of a Standardized Nursing Intervention Protocol (SNIP) on overall quality of life (QOL); physical, psychological, social, and spiritual well-being subscales; and functional status of patients undergoing allogeneic hematopoietic stem cell transplantation (AHSCT) at discharge, 3, 6, and 12 months post-hospitalization as compared to AHSCT patients who receive the usual care and attention control.

Secondary

* Test the effects of SNIP-AHSCT on time-to-first complication, total number of complications, and mortality across these groups of patients.
* Identify subgroups of patients who benefit most from the SNIP-AHSCT in relation to sociodemographic characteristics, disease and clinical factors, and transplant factors.
* Decompose the effect of the SNIP-AHSCT on QOL into direct and indirect effects.

OUTLINE: Patients are randomized to 1 of 2 treatment groups.

* Group 1: Patients receive home teaching visits on medical aspects of self care, monitor and respond to signs and symptoms of infections, recommended exercise and nutrition program, relevant literature on bone marrow transplantation, diet, nutrition, and a variety of resources at 1, 2, and 3 months after hospital discharge. Patients also receive telephone-reinforcement calls monthly in months 4-12, and have a 24-hour telephone availability throughout the study. Patients complete the City of Hope quality of life questionnaires on physical, psychological, social, and spiritual well-being, and physical functional status at discharge, and then at 3, 6, and 12 months after hospitalization.
* Group 2: Patients receive usual medical care and attention at discharge, and then at 3, 6, and 12 months after hospitalization. Patients also have a hot-line availability throughout the study.

Conditions

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Chronic Myeloproliferative Disorders Leukemia Lymphoma Multiple Myeloma and Plasma Cell Neoplasm Myelodysplastic Syndromes Myelodysplastic/Myeloproliferative Neoplasms Psychosocial Effects of Cancer and Its Treatment Therapy-related Toxicity

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

HEALTH_SERVICES_RESEARCH

Blinding Strategy

SINGLE

Outcome Assessors

Interventions

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exercise intervention

Those on the Standard Nursing Intervention Program will be offered six educational sessions spaced over the first 3 months after discharge.

Those on the Usual Care plus Attention Control program will be offered a copy of the complete teaching manual for Hematopoietic Cell Transplant patients which will stay with them during hospitalization and be sent home after discharge.

Intervention Type BEHAVIORAL

telephone-based intervention

Those on the Standard Nursing Intervention Program will receive phone calls from the Intervention Nurse after the first 3 months and then monthly calls up to 12 months post hospital discharge.

For those on the Usual Care plus Attention Control program, the Intervention Nurse will be available by phone or email within 48 hours of request for 100 days post transplant.

Intervention Type BEHAVIORAL

dietary intervention

Those on the Standard Nursing Intervention Program will be offered six educational sessions spaced over the first 3 months after discharge.

Those on the Usual Care plus Attention Control program will be offered a copy of the complete teaching manual for Hematopoietic Cell Transplant patients which will stay with them during hospitalization and be sent home after discharge.

Intervention Type DIETARY_SUPPLEMENT

educational intervention

Those on the Standard Nursing Intervention Program will be offered six educational sessions spaced over the first 3 months after discharge.

Those on the Usual Care plus Attention Control program will be offered a copy of the complete teaching manual for Hematopoietic Cell Transplant patients which will stay with them during hospitalization and be sent home after discharge.

Intervention Type OTHER

questionnaire administration

For both groups of participants, administered at baseline (prior to hospital discharge and 3, 6, and 12 months post hospital discharge.

Intervention Type OTHER

allogeneic bone marrow transplantation

Patient with a diagnosis of a hematologic cancer scheduled for a single allogeneic bone marrow transplant.

Intervention Type PROCEDURE

allogeneic hematopoietic stem cell transplantation

Patient with a diagnosis of a hematologic cancer scheduled for a single allogeneic stem cell transplant.

Intervention Type PROCEDURE

assessment of therapy complications

Collected throughout the 12 month study period

Intervention Type PROCEDURE

peripheral blood stem cell transplantation

Patient with a diagnosis of a hematologic cancer scheduled for a single allogeneic stem cell transplant.

Intervention Type PROCEDURE

psychosocial assessment and care

Those on the Standard Nursing Intervention Program will be offered six educational sessions spaced over the first 3 months after discharge. They will also receive phone calls from the Intervention Nurse after the first 3 months and then monthly calls up to 12 months post hospital discharge.

Intervention Type PROCEDURE

quality-of-life assessment

For both groups of participants, questionnaires administered at baseline (prior to hospital discharge and 3, 6, and 12 months post hospital discharge.

Intervention Type PROCEDURE

standard follow-up care

Those on the Usual Care plus Attention Control program will be offered a copy of the complete teaching manual for Hematopoietic Cell Transplant patients which will stay with them during hospitalization and be sent home after discharge. Also the Intervention Nurse will be available by phone or email within 48 hours of request for 100 days post transplant.

Intervention Type PROCEDURE

Eligibility Criteria

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Inclusion Criteria

DISEASE CHARACTERISTICS:

* Diagnosis of a hematologic cancer (e.g., leukemia or lymphoma)
* Scheduled for a single allogeneic bone marrow or peripheral blood stem cell transplantation

PATIENT CHARACTERISTICS:

* Living within a 50-mile radius of the City of Hope National Medical Center
* English-speaking

PRIOR CONCURRENT THERAPY:

* See Disease Characteristics
* No prior hematopoietic stem cell transplantation
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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National Cancer Institute (NCI)

NIH

Sponsor Role collaborator

City of Hope Medical Center

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Marcia Grant, RN, DNSc, FAAN

Role: PRINCIPAL_INVESTIGATOR

City of Hope Comprehensive Cancer Center

Locations

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City of Hope Comprehensive Cancer Center

Duarte, California, United States

Site Status

Countries

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United States

Other Identifiers

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R01CA107446

Identifier Type: NIH

Identifier Source: secondary_id

View Link

P30CA033572

Identifier Type: NIH

Identifier Source: secondary_id

View Link

CHNMC-05081

Identifier Type: -

Identifier Source: secondary_id

CDR0000643265

Identifier Type: REGISTRY

Identifier Source: secondary_id

05081

Identifier Type: -

Identifier Source: org_study_id

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