Trial Outcomes & Findings for LBH589 in Refractory Myelodysplastic Syndromes (MDS) (NCT NCT00594230)

NCT ID: NCT00594230

Last Updated: 2021-11-22

Results Overview

Overall response rate (ORR) is defined by the modified International Working Group (IWG) Response Criteria for MDS. In the marrow, Complete Response (CR) is \<= 5% blasts present with normal maturation of all cell lines. In peripheral blood, CR is defined as hemoglobin \>= 11 g/dL, ANC \>= 1000/mL, and platelets \>= 100,000 with 0% blasts present. Partial Response (PR) is defined the same as CR with blasts decreased by \>= 50% and \>= 5% blasts in the marrow.

Recruitment status

TERMINATED

Study phase

PHASE2

Target enrollment

26 participants

Primary outcome timeframe

Every 8 weeks up to 24 months on-study.

Results posted on

2021-11-22

Participant Flow

Participant milestones

Participant milestones
Measure
Panobinostat 30 mg
Panobinostat(30 mg PO) will be administered three times a week on Monday, Wednesday and Friday. Treatment will be given over 21 days followed by a 7 day rest period and repeated every 28 days. Patients will be assessed for toxicity on an ongoing basis and disease assessment will be determined every 2 treatment cycles (8 weeks). Patients will be allowed to continue on treatment for a maximum of eight four week treatment cycles. Treatment will be discontinued if there is evidence of disease progression, unacceptable toxicity and/or at the discretion of the investigator.
Panobinostat 20 mg
Panobinostat(20 mg PO) will be administered three times a week on Monday, Wednesday and Friday. Treatment will be given over 21 days followed by a 7 day rest period and repeated every 28 days. Patients will be assessed for toxicity on an ongoing basis and disease assessment will be determined every 2 treatment cycles (8 weeks). Patients will be allowed to continue on treatment for a maximum of eight four week treatment cycles. Treatment will be discontinued if there is evidence of disease progression, unacceptable toxicity and/or at the discretion of the investigator.
Overall Study
STARTED
16
10
Overall Study
COMPLETED
1
1
Overall Study
NOT COMPLETED
15
9

Reasons for withdrawal

Withdrawal data not reported

Baseline Characteristics

LBH589 in Refractory Myelodysplastic Syndromes (MDS)

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
Panobinostat 30 mg
n=16 Participants
Panobinostat(30 mg PO) will be administered three times a week on Monday, Wednesday and Friday. Treatment will be given over 21 days followed by a 7 day rest period and repeated every 28 days. Patients will be assessed for toxicity on an ongoing basis and disease assessment will be determined every 2 treatment cycles (8 weeks). Patients will be allowed to continue on treatment for a maximum of eight four week treatment cycles. Treatment will be discontinued if there is evidence of disease progression, unacceptable toxicity and/or at the discretion of the investigator.
Panobinostat 20 mg
n=10 Participants
Panobinostat(20 mg PO) will be administered three times a week on Monday, Wednesday and Friday. Treatment will be given over 21 days followed by a 7 day rest period and repeated every 28 days. Patients will be assessed for toxicity on an ongoing basis and disease assessment will be determined every 2 treatment cycles (8 weeks). Patients will be allowed to continue on treatment for a maximum of eight four week treatment cycles. Treatment will be discontinued if there is evidence of disease progression, unacceptable toxicity and/or at the discretion of the investigator.
Total
n=26 Participants
Total of all reporting groups
Age, Continuous
75 years
n=5 Participants
74 years
n=7 Participants
75 years
n=5 Participants
Sex: Female, Male
Female
1 Participants
n=5 Participants
6 Participants
n=7 Participants
7 Participants
n=5 Participants
Sex: Female, Male
Male
15 Participants
n=5 Participants
4 Participants
n=7 Participants
19 Participants
n=5 Participants
Region of Enrollment
United States
16 participants
n=5 Participants
10 participants
n=7 Participants
26 participants
n=5 Participants

PRIMARY outcome

Timeframe: Every 8 weeks up to 24 months on-study.

Population: All evaluable patients assessed for response prior to early study termination - one patient in each arm was not evaluable due to coming off-study prior to assessment

Overall response rate (ORR) is defined by the modified International Working Group (IWG) Response Criteria for MDS. In the marrow, Complete Response (CR) is \<= 5% blasts present with normal maturation of all cell lines. In peripheral blood, CR is defined as hemoglobin \>= 11 g/dL, ANC \>= 1000/mL, and platelets \>= 100,000 with 0% blasts present. Partial Response (PR) is defined the same as CR with blasts decreased by \>= 50% and \>= 5% blasts in the marrow.

Outcome measures

Outcome measures
Measure
Panobinostat 30 mg
n=15 Participants
Panobinostat(30 mg PO) will be administered three times a week on Monday, Wednesday and Friday. Treatment will be given over 21 days followed by a 7 day rest period and repeated every 28 days. Patients will be assessed for toxicity on an ongoing basis and disease assessment will be determined every 2 treatment cycles (8 weeks). Patients will be allowed to continue on treatment for a maximum of eight four week treatment cycles. Treatment will be discontinued if there is evidence of disease progression, unacceptable toxicity and/or at the discretion of the investigator.
Panobinostat 20 mg
n=9 Participants
Panobinostat(20 mg PO) will be administered three times a week on Monday, Wednesday and Friday. Treatment will be given over 21 days followed by a 7 day rest period and repeated every 28 days. Patients will be assessed for toxicity on an ongoing basis and disease assessment will be determined every 2 treatment cycles (8 weeks). Patients will be allowed to continue on treatment for a maximum of eight four week treatment cycles. Treatment will be discontinued if there is evidence of disease progression, unacceptable toxicity and/or at the discretion of the investigator.
Overall Response Rate (CR, Marrow CR + PR) of LBH in Patients With Relapsed or Refractory MDS.
0 participants
0 participants

SECONDARY outcome

Timeframe: Every 8 weeks up to 24 months on-study, every 3 months in follow-up until progression of disease

Population: Study terminated early, no results are available for this endpoint as the analysis was not done.

Time to disease progression is defined as the time between day 1 cycle 1 and time to first documented disease progression. Disease progression is defined using Response Evaluation Criteria In Solid Tumors Criteria (RECIST v1.0), as a 20% increase in the sum of the longest diameter of target lesions, or a measurable increase in a non-target lesion, or the appearance of new lesions.

Outcome measures

Outcome data not reported

SECONDARY outcome

Timeframe: Every 8 weeks up to 24 months on-study

Population: Study terminated early, no results are available for this endpoint as the analysis was not done

Hematologic measures will include total WBC and platelets

Outcome measures

Outcome data not reported

SECONDARY outcome

Timeframe: Every 8 weeks up to 24 months on-study

Population: Study terminated early, no results are available for this endpoint as the analysis was not done

Duration of response is defined as the time from when objective response is realized until time to first documented disease progression. Disease progression is defined using Response Evaluation Criteria In Solid Tumors Criteria (RECIST v1.0), as a 20% increase in the sum of the longest diameter of target lesions, or a measurable increase in a non-target lesion, or the appearance of new lesions. Objective Response = CR + PR. Per Response Evaluation Criteria In Solid Tumors Criteria (RECIST v1.0) for target lesions and assessed by MRI or CT: Complete Response (CR), Disappearance of all target lesions; Partial Response (PR), \>=30% decrease in the sum of the longest diameter of target lesions.

Outcome measures

Outcome data not reported

SECONDARY outcome

Timeframe: 24 months

Population: Study terminated early, no results are available for this endpoint as the analysis was not done

Time to treatment failure is defined as measuring the time between cycle 1 day 1 to discontinuation for any reason.

Outcome measures

Outcome data not reported

SECONDARY outcome

Timeframe: 24 months on-study, patients followed every 3 months in follow-up

Population: Study terminated early, no results are available for this endpoint as the analysis was not done

The Length of Time, in Months, That Patients Were Alive From Their First Date of Protocol Treatment Until Death

Outcome measures

Outcome data not reported

SECONDARY outcome

Timeframe: 24 months

The reported incidence of AEs and SAEs with an onset on or after the initiation of therapy was graded according to National Cancer Institute Common Terminology Criteria for Adverse Events (NCI CTCAE) version 4.0

Outcome measures

Outcome measures
Measure
Panobinostat 30 mg
n=16 Participants
Panobinostat(30 mg PO) will be administered three times a week on Monday, Wednesday and Friday. Treatment will be given over 21 days followed by a 7 day rest period and repeated every 28 days. Patients will be assessed for toxicity on an ongoing basis and disease assessment will be determined every 2 treatment cycles (8 weeks). Patients will be allowed to continue on treatment for a maximum of eight four week treatment cycles. Treatment will be discontinued if there is evidence of disease progression, unacceptable toxicity and/or at the discretion of the investigator.
Panobinostat 20 mg
n=10 Participants
Panobinostat(20 mg PO) will be administered three times a week on Monday, Wednesday and Friday. Treatment will be given over 21 days followed by a 7 day rest period and repeated every 28 days. Patients will be assessed for toxicity on an ongoing basis and disease assessment will be determined every 2 treatment cycles (8 weeks). Patients will be allowed to continue on treatment for a maximum of eight four week treatment cycles. Treatment will be discontinued if there is evidence of disease progression, unacceptable toxicity and/or at the discretion of the investigator.
Safety and Tolerability of LBH589 in Patients With Relapsed/Refractory MDS by Measuring the Number of Participants With Adverse Events
15 Participants
9 Participants

Adverse Events

Panobinostat 20 mg

Serious events: 3 serious events
Other events: 9 other events
Deaths: 0 deaths

Panobinostat 30 mg

Serious events: 6 serious events
Other events: 15 other events
Deaths: 0 deaths

Serious adverse events

Serious adverse events
Measure
Panobinostat 20 mg
n=10 participants at risk
Panobinostat(20 mg PO) will be administered three times a week on Monday, Wednesday and Friday. Treatment will be given over 21 days followed by a 7 day rest period and repeated every 28 days. Patients will be assessed for toxicity on an ongoing basis and disease assessment will be determined every 2 treatment cycles (8 weeks). Patients will be allowed to continue on treatment for a maximum of eight four week treatment cycles. Treatment will be discontinued if there is evidence of disease progression, unacceptable toxicity and/or at the discretion of the investigator.
Panobinostat 30 mg
n=16 participants at risk
Panobinostat(30 mg PO) will be administered three times a week on Monday, Wednesday and Friday. Treatment will be given over 21 days followed by a 7 day rest period and repeated every 28 days. Patients will be assessed for toxicity on an ongoing basis and disease assessment will be determined every 2 treatment cycles (8 weeks). Patients will be allowed to continue on treatment for a maximum of eight four week treatment cycles. Treatment will be discontinued if there is evidence of disease progression, unacceptable toxicity and/or at the discretion of the investigator.
Gastrointestinal disorders
Abdominal Pain
20.0%
2/10
12.5%
2/16
Blood and lymphatic system disorders
Febrile neutropenia
0.00%
0/10
25.0%
4/16
Infections and infestations
Infections and infestations - Other, pneumonia
0.00%
0/10
6.2%
1/16
Investigations
Platelet count decreased
0.00%
0/10
6.2%
1/16
General disorders
Pain
0.00%
0/10
6.2%
1/16
General disorders
General disorders and administration site conditions - Other, compartment syndrome
0.00%
0/10
6.2%
1/16
Infections and infestations
Infections and infestations - Other, unspecified
0.00%
0/10
6.2%
1/16
Cardiac disorders
Atrial Fibrillation
10.0%
1/10
0.00%
0/16
Blood and lymphatic system disorders
Anemia
10.0%
1/10
0.00%
0/16

Other adverse events

Other adverse events
Measure
Panobinostat 20 mg
n=10 participants at risk
Panobinostat(20 mg PO) will be administered three times a week on Monday, Wednesday and Friday. Treatment will be given over 21 days followed by a 7 day rest period and repeated every 28 days. Patients will be assessed for toxicity on an ongoing basis and disease assessment will be determined every 2 treatment cycles (8 weeks). Patients will be allowed to continue on treatment for a maximum of eight four week treatment cycles. Treatment will be discontinued if there is evidence of disease progression, unacceptable toxicity and/or at the discretion of the investigator.
Panobinostat 30 mg
n=16 participants at risk
Panobinostat(30 mg PO) will be administered three times a week on Monday, Wednesday and Friday. Treatment will be given over 21 days followed by a 7 day rest period and repeated every 28 days. Patients will be assessed for toxicity on an ongoing basis and disease assessment will be determined every 2 treatment cycles (8 weeks). Patients will be allowed to continue on treatment for a maximum of eight four week treatment cycles. Treatment will be discontinued if there is evidence of disease progression, unacceptable toxicity and/or at the discretion of the investigator.
Investigations
Platelet Count Decreased
60.0%
6/10
93.8%
15/16
Blood and lymphatic system disorders
Anemia
70.0%
7/10
75.0%
12/16
General disorders
Fatigue
70.0%
7/10
75.0%
12/16
Investigations
Neutrophil Count Decreased
40.0%
4/10
93.8%
15/16
Gastrointestinal disorders
Diarrhea
80.0%
8/10
50.0%
8/16
Metabolism and nutrition disorders
Anorexia
20.0%
2/10
75.0%
12/16
Gastrointestinal disorders
Nausea
60.0%
6/10
50.0%
8/16
Respiratory, thoracic and mediastinal disorders
Dyspnea
60.0%
6/10
37.5%
6/16
Musculoskeletal and connective tissue disorders
Myalgia
80.0%
8/10
18.8%
3/16
Investigations
White Blood Cell Decreased
20.0%
2/10
50.0%
8/16
Nervous system disorders
Dizziness
50.0%
5/10
25.0%
4/16
General disorders
Edema
30.0%
3/10
31.2%
5/16
Musculoskeletal and connective tissue disorders
Generalized Muscle Weakness
30.0%
3/10
31.2%
5/16
Nervous system disorders
Peripheral Sensory Neuropathy
20.0%
2/10
31.2%
5/16
Respiratory, thoracic and mediastinal disorders
Cough
30.0%
3/10
18.8%
3/16
General disorders
Fever
30.0%
3/10
18.8%
3/16
Gastrointestinal disorders
Vomiting
30.0%
3/10
18.8%
3/16
Gastrointestinal disorders
Gastroesophageal Reflux Disease
0.00%
0/10
31.2%
5/16
Gastrointestinal disorders
Constipation
10.0%
1/10
18.8%
3/16
Nervous system disorders
Dysgeusia
20.0%
2/10
12.5%
2/16
Gastrointestinal disorders
Gastrointestinal Disorders - Other, Stomatitis
10.0%
1/10
18.8%
3/16
Respiratory, thoracic and mediastinal disorders
Nasal Congestion
20.0%
2/10
6.2%
1/16
General disorders
Non-Cardiac Chest Pain
20.0%
2/10
12.5%
2/16
Skin and subcutaneous tissue disorders
Rash
20.0%
2/10
12.5%
2/16
Gastrointestinal disorders
Abdominal Pain
20.0%
2/10
6.2%
1/16
Injury, poisoning and procedural complications
Bruising
0.00%
0/10
18.8%
3/16
Cardiac disorders
Cardiac Disorders - Other, Systolic Murmur
10.0%
1/10
6.2%
1/16
Psychiatric disorders
Depression
10.0%
1/10
6.2%
1/16
Cardiac disorders
Electrocardiogram Qt Corrected Interval Prolonged
30.0%
3/10
0.00%
0/16
Respiratory, thoracic and mediastinal disorders
Epistaxis
20.0%
2/10
6.2%
1/16
General disorders
General Disorders And Administration Site Conditions - Other, Pain At Port Site
30.0%
3/10
0.00%
0/16
Metabolism and nutrition disorders
Hypomagnesemia
10.0%
1/10
6.2%
1/16
Skin and subcutaneous tissue disorders
Skin And Subcutaneous Tissue Disorders - Other, Ecchymosis
30.0%
3/10
0.00%
0/16
Cardiac disorders
Cardiac Disorders - Other, Tachycardia
20.0%
2/10
0.00%
0/16
Metabolism and nutrition disorders
Dehydration
20.0%
2/10
0.00%
0/16
Skin and subcutaneous tissue disorders
Dry Skin
0.00%
0/10
6.2%
1/16
Nervous system disorders
Headache
20.0%
2/10
0.00%
0/16
Vascular disorders
Hematoma
20.0%
2/10
0.00%
0/16
Endocrine disorders
Hyperthyroidism
10.0%
1/10
6.2%
1/16
Metabolism and nutrition disorders
Hypokalemia
0.00%
0/10
6.2%
1/16
Vascular disorders
Hypotension
20.0%
2/10
0.00%
0/16
Psychiatric disorders
Insomnia
10.0%
1/10
6.2%
1/16
Respiratory, thoracic and mediastinal disorders
Respiratory, Thoracic And Mediastinal Disorders - Other, Hemoptysis
10.0%
1/10
6.2%
1/16
Skin and subcutaneous tissue disorders
Skin And Subcutaneous Tissue Disorders - Other, Petechiae
10.0%
1/10
6.2%
1/16
Infections and infestations
Skin Infection
10.0%
1/10
6.2%
1/16
Infections and infestations
Upper Respiratory Infection
10.0%
1/10
6.2%
1/16
Renal and urinary disorders
Urinary Frequency
10.0%
1/10
6.2%
1/16
Investigations
Weight Loss
0.00%
0/10
6.2%
1/16

Additional Information

John Hainsworth, MD

Sarah Cannon Research Institute

Phone: 1-877-691-7274

Results disclosure agreements

  • Principal investigator is a sponsor employee The sponsor can review/embargo results communications prior to public release for a period that is \>60 days but ≤180 days from date submitted to sponsor, who may require changes to the communication in order to remove specifically identified confidential information (other than study data) and/or delay the proposed publication to enable the sponsor to seek patent protection for inventions. The PI may not publish its results until 18 mos. after the trial has been completed at all sites.
  • Publication restrictions are in place

Restriction type: OTHER