Trial Outcomes & Findings for Allogeneic SCT Of Pts With SCID And Other Primary Immunodeficiency Disorders (NCT NCT00579137)

NCT ID: NCT00579137

Last Updated: 2013-07-02

Results Overview

Recruitment status

TERMINATED

Study phase

PHASE1/PHASE2

Target enrollment

3 participants

Primary outcome timeframe

100 Days

Results posted on

2013-07-02

Participant Flow

Participant milestones

Participant milestones
Measure
Participants With SCID or Primary Immunodeficiency Disorder
Participants received an allogeneic stem cell transplant with the following conditioning: Day 8 Campath 1H as per CAGT SOP, Fludarabine 10 kg or less: 1 mg/kg; \> 10 kg: 30 mg/m2 D7 Campath 1H as per CAGT SOP, Fludarabine 10 kg or less: 1 mg/kg; \> 10 kg: 30 mg/m2 D6 Campath 1H as per CAGT SOP, Fludarabine 10 kg or less: 1 mg/kg; \> 10 kg: 30 mg/m2 D5 Anti-CD45 MAb 400ug/kg over 6 hr, Fludarabine 10 kg or less: 1 mg/kg; \> 10 kg: 30 mg/m2 D4 Anti-CD45 MAb 400ug/kg over 6 hr, Fludarabine 10 kg or less: 1 mg/kg; \> 10 kg: 30 mg/m2 D3 Anti-CD45 MAb 400ug/kg over 6 hr D2 Anti-CD45 MAb 400ug/kg over 6 hr D1 rest D0 Stem Cell Infusion Campath dose is weight based: for patients less than 15 kg administer Campath 3 mg; for patients \>15 kg to 30 kg administer Campath 5 mg; for patients \> 30 kg administer Campath 10 mg. Campath will be dosed and administered as per CAGT SOP. Anti-CD45 infusion will be administered according to CAGT SOPs.
Overall Study
STARTED
3
Overall Study
COMPLETED
3
Overall Study
NOT COMPLETED
0

Reasons for withdrawal

Withdrawal data not reported

Baseline Characteristics

Allogeneic SCT Of Pts With SCID And Other Primary Immunodeficiency Disorders

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
Single Group
n=3 Participants
only one group
Age, Customized
<=1 years
3 participants
n=5 Participants
Sex: Female, Male
Female
0 Participants
n=5 Participants
Sex: Female, Male
Male
3 Participants
n=5 Participants

PRIMARY outcome

Timeframe: 100 Days

Outcome measures

Outcome measures
Measure
Single Group
n=3 Participants
only one group
Number of Patients With Donor Engraftment
1 participants

SECONDARY outcome

Timeframe: 1 Year

Outcome measures

Outcome measures
Measure
Single Group
n=3 Participants
only one group
Patients Alive at 1 Year
3 participants

SECONDARY outcome

Timeframe: 100 days

Outcome measures

Outcome measures
Measure
Single Group
n=3 Participants
only one group
Number of Patients With Grade III or IV Toxicity
0 participants

SECONDARY outcome

Timeframe: 100 days

Outcome measures

Outcome measures
Measure
Single Group
n=3 Participants
only one group
Number of Patients With Grade III to IV Acute GVHD
0 participants

Adverse Events

Single Group

Serious events: 0 serious events
Other events: 3 other events
Deaths: 0 deaths

Serious adverse events

Adverse event data not reported

Other adverse events

Other adverse events
Measure
Single Group
n=3 participants at risk
only one group
Metabolism and nutrition disorders
AST, SGOT(serum glutamic oxaloacetic transaminase)
33.3%
1/3 • Number of events 5
Metabolism and nutrition disorders
Albumin, serum-low (hypoalbuminemia)
33.3%
1/3 • Number of events 5
Immune system disorders
Allergic reaction/hypersensitivity (including drug fever)
33.3%
1/3 • Number of events 1
Respiratory, thoracic and mediastinal disorders
Bronchospasm, wheezing
33.3%
1/3 • Number of events 1
Metabolism and nutrition disorders
Calcium, serum-low (hypocalcemia)
33.3%
1/3 • Number of events 2
Gastrointestinal disorders
Constipation
33.3%
1/3 • Number of events 3
Respiratory, thoracic and mediastinal disorders
Cough
33.3%
1/3 • Number of events 3
Skin and subcutaneous tissue disorders
Dermatology/Skin - Other: Livedo reticularis
33.3%
1/3 • Number of events 2
Gastrointestinal disorders
Diarrhea
33.3%
1/3 • Number of events 5
Skin and subcutaneous tissue disorders
Dry skin
33.3%
1/3 • Number of events 1
Respiratory, thoracic and mediastinal disorders
Dyspnea (shortness of breath)
33.3%
1/3 • Number of events 2
General disorders
Fever (in the absence of neutropenia, where neutropenia is defined as ANC <1.0 x 10e9/L)
33.3%
1/3 • Number of events 1
Metabolism and nutrition disorders
Glucose, serum-low (hypoglycemia)
33.3%
1/3 • Number of events 1
Blood and lymphatic system disorders
Hemoglobin
33.3%
1/3 • Number of events 5
Hepatobiliary disorders
Hepatobiliary/Pancreas - Other: Liver GvHD
33.3%
1/3 • Number of events 1
Infections and infestations
Infection (documented clinically or microbiologically) with Grade 3 or 4 neutrophils (ANC <1.0 x 10e
33.3%
1/3 • Number of events 2
Infections and infestations
Infection with normal ANC or Grade 1 or 2 neutrophils - Catheter-related
33.3%
1/3 • Number of events 1
Blood and lymphatic system disorders
Leukocytes (total WBC)
33.3%
1/3 • Number of events 17
Blood and lymphatic system disorders
Lymphopenia
33.3%
1/3 • Number of events 23
Gastrointestinal disorders
Mucositis/stomatitis (clinical exam) - Oral cavity
33.3%
1/3 • Number of events 1
Gastrointestinal disorders
Nausea
33.3%
1/3 • Number of events 3
Blood and lymphatic system disorders
Neutrophils/granulocytes (ANC/AGC)
33.3%
1/3 • Number of events 10
Blood and lymphatic system disorders
PTT (Partial Thromboplastin Time)
33.3%
1/3 • Number of events 1
General disorders
Pain - Abdomen NOS
33.3%
1/3 • Number of events 1
Metabolism and nutrition disorders
Phosphate, serum-low (hypophosphatemia)
33.3%
1/3 • Number of events 4
Blood and lymphatic system disorders
Platelets
33.3%
1/3 • Number of events 1
Metabolism and nutrition disorders
Potassium, serum-high (hyperkalemia)
33.3%
1/3 • Number of events 7
Respiratory, thoracic and mediastinal disorders
Pulmonary/Upper Respiratory - Other: Nasal congestion
33.3%
1/3 • Number of events 1
Skin and subcutaneous tissue disorders
Rash/desquamation
33.3%
1/3 • Number of events 3
Metabolism and nutrition disorders
Sodium, serum-low (hyponatremia)
66.7%
2/3 • Number of events 2
Metabolism and nutrition disorders
Triglyceride, serum-high (hypertriglyceridemia)
33.3%
1/3 • Number of events 1
Gastrointestinal disorders
Vomiting
33.3%
1/3 • Number of events 5
Metabolism and nutrition disorders
ALT, SGPT (serum glutamic pyruvic transaminase)
33.3%
1/3 • Number of events 5

Additional Information

Robert Krance, MD

Baylor

Phone: 832-824-4661

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place