Childhood Chronic Illness: An Educational Program for Parents of Children With On-Going Health Care Needs

NCT ID: NCT00194584

Last Updated: 2008-09-29

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

Get a concise snapshot of the trial, including recruitment status, study phase, enrollment targets, and key timeline milestones.

Recruitment Status

COMPLETED

Clinical Phase

NA

Total Enrollment

129 participants

Study Classification

INTERVENTIONAL

Study Start Date

2004-10-31

Study Completion Date

2007-02-28

Brief Summary

Review the sponsor-provided synopsis that highlights what the study is about and why it is being conducted.

The long-term goal of this research is to strengthen parents' abilities to manage the complexities of childhood chronic illness. To achieve this goal, the team of parents, health care professionals, and researchers proposes the following specific aim:

* Develop, implement, and test a unique psycho-educational program, Living with Childhood Chronic Illness (the Program), for effectiveness with parents of children who have chronic illnesses.

The investigators propose the following hypotheses:

At both 6 and 12 month follow-up points, parents taking part in the intervention, in contrast to control parents, will have:

1. Greater perceived self-efficacy regarding their ability to manage the child's chronic condition;
2. Greater parental ability to involve their child in shared management activities;
3. Greater parental ability to cope at 6 and 12 months following the end of the intervention;
4. Greater emotional health; and
5. Greater parental perceived family quality of life.

Detailed Description

Dive into the extended narrative that explains the scientific background, objectives, and procedures in greater depth.

Parents will enroll in the study by contacting the study number: 206-987-1000 or by sending an email message to [email protected]. They will complete a survey taking no more than 60 minutes. Parents will then be randomized to either take the class immediately or be in the control group which can take the class in 12 months. At the end of 6 and 12 months all the participants again take the survey.

Classes are 7 weeks in length, 2 hours each and are offered at various locations throughout the Greater Seattle area.

Conditions

See the medical conditions and disease areas that this research is targeting or investigating.

Chronic Illness

Keywords

Explore important study keywords that can help with search, categorization, and topic discovery.

children chronic illness parent education parent support

Study Design

Understand how the trial is structured, including allocation methods, masking strategies, primary purpose, and other design elements.

Allocation Method

RANDOMIZED

Intervention Model

SINGLE_GROUP

Primary Study Purpose

PREVENTION

Blinding Strategy

NONE

Study Groups

Review each arm or cohort in the study, along with the interventions and objectives associated with them.

1

Group Type EXPERIMENTAL

7 week Building on Family Strengths Program

Intervention Type BEHAVIORAL

Parents in intervention group attend a 2 hr class for seven weeks. These classes provide information, time for discussion and creation of an action plan for the parent to complete in the intervening week.

0

Group Type NO_INTERVENTION

No interventions assigned to this group

Interventions

Learn about the drugs, procedures, or behavioral strategies being tested and how they are applied within this trial.

7 week Building on Family Strengths Program

Parents in intervention group attend a 2 hr class for seven weeks. These classes provide information, time for discussion and creation of an action plan for the parent to complete in the intervening week.

Intervention Type BEHAVIORAL

Eligibility Criteria

Check the participation requirements, including inclusion and exclusion rules, age limits, and whether healthy volunteers are accepted.

Inclusion Criteria

* Child 2-11 years of age, with diagnosed chronic illness
* Parent at least 18 years of age, able to speak and read English at 4th grade level and able to attend a 7 week two-hour class program

Exclusion Criteria

* Child in active hospice treatment
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

Yes

Sponsors

Meet the organizations funding or collaborating on the study and learn about their roles.

Seattle Children's Hospital

OTHER

Sponsor Role collaborator

University of Washington

OTHER

Sponsor Role lead

Responsible Party

Identify the individual or organization who holds primary responsibility for the study information submitted to regulators.

University of Washington

Principal Investigators

Learn about the lead researchers overseeing the trial and their institutional affiliations.

Gail M Kieckhefer, PhD

Role: PRINCIPAL_INVESTIGATOR

University of Washington

Countries

Review the countries where the study has at least one active or historical site.

United States

Other Identifiers

Review additional registry numbers or institutional identifiers associated with this trial.

1R01HS013384-04

Identifier Type: AHRQ

Identifier Source: secondary_id

View Link

04-0564-01

Identifier Type: -

Identifier Source: org_study_id