Trial Outcomes & Findings for Fludeoxyglucose F 18 Positron Emission Tomography and Magnetic Resonance Perfusion Imaging in Patients With Neurofibromatosis 1 and Plexiform Neurofibroma (NCT NCT00060008)

NCT ID: NCT00060008

Last Updated: 2014-04-04

Results Overview

We correlated SUVmax and change in tumor volume over the subsequent year

Recruitment status

TERMINATED

Study phase

NA

Target enrollment

18 participants

Primary outcome timeframe

One year

Results posted on

2014-04-04

Participant Flow

Participant milestones

Participant milestones
Measure
18FDG-PET Scan and MR Perfusion
Subjects will undergo MRI for quantitative (2D and 3D) evaluation of plexiform neurofibroma size, MR perfusion scan, and fludeoxyglucose (18FDG) PET scan at the time of study entry. Subjects who are treated for plexiform neurofibroma will undergo another 18FDG PET scan after one year of study entry. fludeoxyglucose F 18 gadopentetate dimeglumine
Overall Study
STARTED
18
Overall Study
COMPLETED
18
Overall Study
NOT COMPLETED
0

Reasons for withdrawal

Withdrawal data not reported

Baseline Characteristics

Fludeoxyglucose F 18 Positron Emission Tomography and Magnetic Resonance Perfusion Imaging in Patients With Neurofibromatosis 1 and Plexiform Neurofibroma

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
18FDG-PET Scan and MR Perfusion
n=18 Participants
Subjects will undergo MRI for quantitative (2D and 3D) evaluation of plexiform neurofibroma size, MR perfusion scan, and fludeoxyglucose (18FDG) PET scan at the time of study entry. Subjects who are treated for plexiform neurofibroma will undergo another 18FDG PET scan after one year of study entry. fludeoxyglucose F 18 gadopentetate dimeglumine
Age, Customized
14.4 years
n=5 Participants
Sex: Female, Male
Female
9 Participants
n=5 Participants
Sex: Female, Male
Male
9 Participants
n=5 Participants

PRIMARY outcome

Timeframe: One year

We correlated SUVmax and change in tumor volume over the subsequent year

Outcome measures

Outcome measures
Measure
SUVmax < 2
n=11 Participants
Subjects underwent MRI for quantitative (3D) evaluation of plexiform neurofibroma size and fludeoxyglucose (18FDG) PET scan at the time of study entry.
SUVmax >2
n=4 tumors
Subjects underwent MRI for quantitative (3D) evaluation of plexiform neurofibroma size and fludeoxyglucose (18FDG) PET scan at the time of study entry.
Tumor Progression as Measured by Tumor Area and Volume at 1 Year.
4 percentage of change
Interval -0.6 to 63.0
27 percentage of change
Interval 16.0 to 32.0

Adverse Events

18FDG-PET Scan and MR Perfusion

Serious events: 0 serious events
Other events: 0 other events
Deaths: 0 deaths

Serious adverse events

Adverse event data not reported

Other adverse events

Adverse event data not reported

Additional Information

Dr. Michael Fisher

Children's Hospital of Philadelphia

Phone: 215 590 2800

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place