Establishment of a Database for Long-Term Monitoring of Patients With Nephropathic Cystinosis
NCT ID: NCT00004312
Last Updated: 2005-06-24
Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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COMPLETED
400 participants
OBSERVATIONAL
1999-10-31
Brief Summary
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II. Track and monitor all patients including renal transplant, dialysis and post renal transplants.
Detailed Description
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Data are collected from patients and physicians. Information includes disease, treatment, family history, demographic, and physical exam data. The dates of kidney transplantation and/or dialysis initiation are also recorded.
Conditions
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Eligibility Criteria
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Inclusion Criteria
Nephropathic cystinosis diagnosis by white-cell cystine measurement, including infantile and late-onset forms
0 Years
ALL
No
Sponsors
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Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
NIH
University of California, San Diego
OTHER
National Center for Research Resources (NCRR)
NIH
Principal Investigators
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Jerry A. Schneider
Role: STUDY_CHAIR
University of California, San Diego
Locations
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University of California San Diego School of Medicine
La Jolla, California, United States
Countries
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Other Identifiers
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UCSD-970026
Identifier Type: -
Identifier Source: secondary_id
UCSD-950338
Identifier Type: -
Identifier Source: secondary_id
NCRR-M01RR00827-1196
Identifier Type: -
Identifier Source: org_study_id